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Keratoconus Group

@keratoconusgroup.org

A safe and supportive community for people living with keratoconus and the people who care for them. (Est. 2007) Send stories/photos to story@keratoconusgroup.org

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23.12.2023
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Latest posts by Keratoconus Group @keratoconusgroup.org

It is so easy to scroll through Instagram and think everyone else is healthy, rich, and happy. But you're seeing their curated best moments. You aren't seeing their bad eye days, their anxiety, or their mess. Stay in your own lane. You're doing just fine.

22.02.2026 19:34 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Keratomania: The Best Free App for Keratoconus Education
www.youtube.com/watch?v=82C5...

29.12.2025 20:53 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Introducing the Keratoconus Camera PWA Experience keratoconus vision with the new Keratoconus Camera PWA. A safe, private, and interactive tool to raise awareness and help friends understand your vision.

Ever tried to explain to your friends what "ghosting" actually looks like? πŸ‘€ It's hard to put into words, so we built a tool to show them instead. Introducing the Keratoconus Camera, a new app that simulates #keratoconus vision in real-time.

keratomania.com/keratoconus-...

24.12.2025 17:02 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Explaining your vision isn't always easy, so we've built a tool for the KC family to help. Our new web app includes a Keratoconus Camera, a Text Simulator tool, and a crossword puzzle to help educate your loved ones.
Visit Keratomania.com try it out and tag us in your "KC Camera" photos and videos!

20.12.2025 18:20 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Keratomania Shows the World What Keratoconus Looks Like Introducing the Keratoconus Vision Simulator Tools from Keratomania.com

πŸ‘€ Ever wondered what keratoconus looks like? Try @keratomania.com’s simulators today!

www.keratoconusgroup.org/2025/12/kera...

11.12.2025 19:19 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Keratomania Shows the World What Keratoconus Looks Like Introducing the Keratoconus Vision Simulator Tools from Keratomania.com

πŸ‘€ Ever wondered what keratoconus looks like? Try @keratomania.com’s simulators today!

www.keratoconusgroup.org/2025/12/kera...

11.12.2025 19:19 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Keratoconus Simulator

Tired of explaining how keratoconus affects your sight? Our brand-new keratoconus simulator is live. Visit our website, play with the slider, and instantly demonstrate the visual effects of keratoconus. Share this tool with friends to help them understand your vision. keratomania.com/keratoconus-...

17.10.2025 17:48 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Keratomania on Instagram: "Here's a look at the world through the eyes of someone living with keratoconus. This is an edit of a powerful moment from the Brazil vs. Croatia match during the 2014 FIFA W...

Here's a look at the world through the eyes of someone living with keratoconus. www.instagram.com/keratomania/...

17.08.2025 15:25 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Happy 4th of July!

04.07.2025 16:16 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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25 Most Googled Questions about Keratoconus The 25 keratoconus questions everyone is Googlingβ€”answered

In this blog post we will answer 25 of the most googled questions about #keratoconus

www.keratoconusgroup.org/2023/09/most...

01.07.2025 14:53 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Some see the world in HD, I see it in Monet. 🎨

03.06.2025 22:13 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Here is a helpful vision simulation we made back in 2012. You can share this image with your friends to let them know how #keratoconus affects your vision.

©️ CC BY-NC-SA πŸ”— flic.kr/p/dswuYh #timessquarenyc #timessquare #newyork #newyorkcity #manhattan #nyc

28.05.2025 18:13 πŸ‘ 1 πŸ” 1 πŸ’¬ 2 πŸ“Œ 0
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Top 10 Reasons to Join Our Keratoconus Community Ready to discover why you should become a part of our family? Here are the top 10 reasons to click that "join" button today:

Ready to discover why you should become a part of our #keratoconus community?

Here are the top 10 reasons to click that "join" button today: www.keratoconusgroup.org/2025/04/top-...

18.04.2025 19:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Our Reddit community has reached 20,000 members!

Join us at Reddit.com/r/Keratoconus to share your story with millions of Redditors worldwide, ask all your questions, and connect with people who understand keratoconus.

#keratoconus #ophthalmology #optometry #reddit

01.04.2025 21:48 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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A Very Honest Talk About Keratoconus You can't fight keratoconus, you just have to accept it and deal with it.

Honest insights on living with keratoconus. A must-read for anyone affected. www.keratoconusgroup.org/2019/10/a-ve...

10.03.2025 14:15 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Keratoconus... the ultimate resolution killer.

#pcgaming #pcgames #pcgamer

23.11.2024 16:03 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Oh my God. So I have Keratoconus in my left eye and it's developing in my right eye as well. Took part of a study last August because I needed surgery.

My left is 20/60 and my right eye bounces from 20/15 to 20/30

24.02.2025 18:05 πŸ‘ 0 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

I miss reading physical books 😭 #keratoconus

25.02.2025 02:25 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Looking into goggles for my eyes while I sleep.. the world of keratoconus is super fun

07.03.2025 20:43 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Sterile Keratolysis Following Porcine Collagen Implant in Advanced Keratoconus No abstract available

ICYMI: Sterile Keratolysis Following Porcine Collagen Implant in Advanced Keratoconus: No abstract available #Cornea #Ophthalmology #Ophthotwitter

09.03.2025 04:52 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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I'm grateful for our wonderful community, for the knowledge we share and the support we give one another. Challenges are faced more easily when we have each other for support. I'm thankful that I don't have to face #keratoconus alone.

Happy Thanksgiving, everyone!

28.11.2024 17:04 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Keratoconus... the ultimate resolution killer.

#pcgaming #pcgames #pcgamer

23.11.2024 16:03 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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World Keratoconus Day: Wallpapers and Posters Celebrate World Keratoconus Day with our unique wallpapers and posters. Let’s stand together in support of the keratoconus community!

This World Keratoconus Day, let's make some noise and raise awareness together.
Visit our website to download wallpapers and posters to share with your friends and family: www.keratoconusgroup.org/2024/10/worl...

10.11.2024 19:13 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Today is World Keratoconus Day!
Every year on November 10 we join together to raise awareness about the impact #keratoconus has on the lives of those affected. Visit our website to learn how you can get involved and help to spread the word: keratoconusgroup.org/WorldKCDay

10.11.2024 15:33 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Tomorrow is World Keratoconus Day! Every year on November 10 we come together to raise awareness about the impact #keratoconus has on the lives of those affected, and their family and friends.
Visit our website to learn how you can participate: www.keratoconusgroup.org/WorldKCDay

09.11.2024 20:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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World Keratoconus Day: Wallpapers and Posters Celebrate World Keratoconus Day with our unique wallpapers and posters. Let’s stand together in support of the keratoconus community!

Get ready to spread awareness! World #Keratoconus Day is coming up on November 10th. Let's make some noise and raise awareness together. Visit our website to download stunning wallpapers and posters to share on your social media and show your support: www.keratoconusgroup.org/2024/10/worl...

01.11.2024 21:35 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Keep Your Eyes Safe on Halloween πŸŽƒ Don’t let an eye infection be the scariest part of your Halloween.

Don’t let an eye infection be the scariest part of your #Halloween
.
All contact lenses must be prescribed by a doctor, including decorative lenses. Any contact lenses that are not prescribed by a doctor are illegal and could cause you harm. www.keratoconusgroup.org/2024/10/keep...

30.10.2024 16:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Our Facebook Group Has Hit 30K Members! Keratoconus Group's private Facebook group for keratoconus patients and eye care professionals now has more than 30,000 members!

Our Facebook group has reached 30,000 members!

We want to take a moment to thank each and every one of you for being a part of this amazing community. We couldn't have done it without you!

www.keratoconusgroup.org/2024/10/face...

20.10.2024 21:47 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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We're excited to share that our private Facebook group has reached a new milestone – over 30,000 members!

Join the conversation today: Facebook.com/groups/KeratoconusGroup

19.10.2024 16:56 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0