's Avatar

@forgetmefrog

South West UK, #autistic, #close2ME, learning as fast as I can! Caring for #pwme

115
Followers
90
Following
39
Posts
17.11.2024
Joined
Posts Following

Latest posts by @forgetmefrog

Hope you have a good supply of those wipes ready!

16.02.2026 22:25 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

This made me smile, love those books. Sorry it’s bad news but glad you are maybe getting some answers now, I hope it helps at least a little (preferably a lot!).

12.02.2026 22:36 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

The perks of having a blind cat! Mine went extremely deaf and I finally managed to open a tuna can in peace (did shed a little tear though the first time it happened).

08.02.2026 22:10 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Cool runnings is a better match with the feature wall colour (on my screen anyway), the other just doesn’t seem to go quite as well - maybe just a shade too dark?

20.01.2026 22:34 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

That sounds amazing. So glad they’re working for you.

10.01.2026 22:15 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

An interesting read, thank you. (It may be worth removing the AI reply to a prompt for writing the blog post partway through?)

04.01.2026 22:15 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

She is just adorable! I love her ear floof. 😍

30.11.2025 22:03 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

1. Do you have a weighted top/blanket that you can have nearby? The gentle pressure can be quite soothing and grounding. I’m quite tactile so like to have soft things around that I can stim with.

2. Not being unreasonable at all. As others have said having someone you can direct them to may help?

13.11.2025 22:42 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

He does it with such confidence and style!

07.11.2025 21:47 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Hope you both feel better quickly

15.10.2025 19:46 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I managed a 10 on this one. 😎 funnily enough I did the long version of this a while back & scored exactly the same as my child - they were later diagnosed autistic. Just don’t think I’ve got the energy to go through the waiting and assessment faff for myself but also feel a fraud without it. πŸ€·πŸ»β€β™€οΈ

17.09.2025 20:58 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

He looks like the most relaxed cat ever. So secure and confident in his home.

17.09.2025 20:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

What a gorgeous little ball of fluff. Those eyes. 😍

03.09.2025 20:53 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I think you need more powders to make your fluids lumpy and grainy - that way you *know* they’re doing something. How about creatine, inulin and D-Ribose to start? 😊

31.08.2025 21:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Happy Birthday Maeve. X

26.08.2025 20:11 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

This is such a cool idea for a useful way of using AI. Bummer it’s still so unreliable. I hope its memory issues improve for you.

20.08.2025 20:48 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

Family and care givers can sign up too though as the healthy controls from reading their β€œblurb”.

18.08.2025 06:14 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I understood it to mean that you could still volunteer if you didn’t have a chronic illness so that they had β€œhealthy controls” to compare with the ME or long Covid cohort?

17.08.2025 21:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

He is so much at home with you and just an adorable fluffball. Love seeing his crazy moments.

17.08.2025 20:55 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Stunning! 😊

14.08.2025 21:16 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Screensaver type things to watch (with or without sound) - eg underseascapes, fire, aquariums. Keeps my eyes busy whilst my brain can wander/shut down.

25.07.2025 21:15 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Dioralyte - the unflavoured one if you can’t tolerate anything else. It can be better than water (especially if you’re pots-y) and gives you a bit of an energy boost with the sugar. Helps me be able to tolerate small amounts of food later.

25.07.2025 21:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

He is adorable and sooooo flluuuffffffyyyy!! Glad to see he is treating his offerings with the appropriate amount of cat disdain. Must be feeling right at home. 😊

20.07.2025 21:10 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Depends on if you were eating all those amazingly aromatic food in an enclosed space on a hot day??? Looks very tasty though. 😊

05.07.2025 20:50 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I’m so sorry to hear you’re still having problems. Dr Claire Taylor is well known on Twitter for her private work & is very knowledgable about orthostatic intolerance/POTs/dysautonomia. There is a NHs tertiary dysautonomia clinic but it’s in London so I don’t know if Scottish NHS would refer there.

02.07.2025 21:17 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I’m still having to tell them that I’m not diabetic because 18 years ago(!!!) I was taking a diabetic drug off label for a different condition and a consultant assumed I was diabetic from my list of drugs I was taking. I still haven’t managed to get it scrubbed from everywhere. πŸ™„πŸ€¬

02.07.2025 21:06 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I love this comic so much and that tattoo is just perfect.

12.06.2025 20:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Me too! The seed ticks are so small a few have got past my defences. Didn’t realise how ill I really felt until I started antibiotics it really is unpleasant.

02.06.2025 20:01 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I don’t go anywhere near there now without a set of tick hooks. Got one out of me that could only have been there for a few hours and still got the rash 3 weeks later. πŸ™„

02.06.2025 18:22 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

In England if you can find a willing consultant or GP (I know…..hens teeth etc etc) then they can write a β€œpatient specific directive” saying you should get the Covid vaccination. Our wonderful consultant has just done that but it’s taken us a few years to find out about it. πŸ™„πŸ™„

20.05.2025 21:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0