05.05.2025 17:36
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New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us?
Hi there! Have been going through a difficult time 😞. Sorry, only just seen this! Hope you're surviving.
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So pleased for you!
Congratulations!
Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts
Good luck!
When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar.
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Great shot
More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed
Cheers for sharing!
Hello!
New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts!
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Nice one! This would work well in monochrome too.
Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team.
Wish I could have been there.
FU ME.
So sorry
Community campaigning together. Campaign update #14. Concerns about lack of funding for the Delivery Plan for ME. How to join #FundThePlan. Long Covid awareness day. New #ThereForME Substack post. A phone displays on its screen: Get involved! #FundThePlan.
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
New ME/chronic illness podcast episode out now!
Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness.
Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad!
Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal
@talmandaniel.bsky.social you might be interested in sharing this in your ME community?
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Ha, love it.
