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Bethan Edwards

@researchpixie

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23.11.2024
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Latest posts by Bethan Edwards @researchpixie

"40% of deaths of learning disabled people were deemed to be avoidable."

This has been known for decades, while services are slashed.

Yet the priority for UK politicians is handing over £ millions to private tech firms.

#PeopleNeedPeople

03.10.2025 08:25 👍 42 🔁 19 💬 0 📌 0

Ooooh & @evanaprika.bsky.social! still haven’t figured this all out yet

03.10.2025 19:32 👍 2 🔁 0 💬 0 📌 0

Thank you for sharing Nell!! 💜💜💜

03.10.2025 19:30 👍 2 🔁 0 💬 1 📌 0

Such an important article from @researchpixie.bsky.social et al

More time and research needed into this neglected area

01.10.2025 18:01 👍 7 🔁 5 💬 2 📌 0
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You don't fund life by funding death. Welfare not warfare.
Survival, not slaughter.

#GenocideAbroadDemocideAtHome #DisabilityRebellion #WelfareNotWarfare #DPAC #CareNotCuts

29.09.2025 13:05 👍 9 🔁 3 💬 0 📌 0

Sending lots and lots of love X

05.07.2025 22:00 👍 1 🔁 0 💬 1 📌 0
Congrats to all at madcovid on achieving £20k. A fantastic effort which h benefited many desperate people. Well done! xxx from mum and me

Congrats to all at madcovid on achieving £20k. A fantastic effort which h benefited many desperate people. Well done! xxx from mum and me

5 years ago I got this text from my Dad 😭

@nellh.bsky.social @researchpixie.bsky.social

03.07.2025 10:02 👍 13 🔁 1 💬 4 📌 0

Oh Jo this is so brilliant to see 💜💜💜 having a bit of a difficult time atm and this reminds me we did something good, really good X

05.07.2025 20:39 👍 1 🔁 0 💬 1 📌 0
Preview
Disability benefit cuts violate human rights even with concessions, MPs warned MPs are being urged to reject the government's disability benefit cuts ahead of a vote on Tuesday (1 July).

“Amnesty International UK called the revisions to the welfare bill “nothing more than a superficial attempt to get MPs to vote through this cruel and harmful legislation”

www.bigissue.com/news/social-...

30.06.2025 20:44 👍 4 🔁 3 💬 0 📌 0
OSF

Shared on X, posting here too:-

One of the hardest and proudest things I’ve done to date and it’s only a preprint*. The product of working with incredible people with lived experience of harm in community mental health services.

*not been peer reviewed.

osf.io/preprints/os...

26.06.2025 16:57 👍 1 🔁 0 💬 0 📌 0

It’s sooooo funny

11.05.2025 19:04 👍 0 🔁 0 💬 1 📌 0

Maybe I can make it my work profile pic

11.05.2025 19:04 👍 0 🔁 0 💬 0 📌 0

Laffing so hard

11.05.2025 19:03 👍 0 🔁 0 💬 2 📌 0
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😂 I asked ChatGPT for a hair cut and this is what I it gave me😂

11.05.2025 19:02 👍 0 🔁 0 💬 1 📌 0

Yes!!

05.05.2025 18:24 👍 2 🔁 0 💬 0 📌 0

Our PDF files have been approved some there’s much better visibility of the paper 😊

05.05.2025 17:19 👍 2 🔁 0 💬 0 📌 0

If anyone knows of any qual research assoc / fellow, systematic reviewer, intervention development posts out in the field of mental health please do let me know x doesn’t need to be full time - could be 1 - 2 days a week. Need something else alongside my PPIE role or I will wither and die. Thanks X

05.05.2025 17:12 👍 2 🔁 1 💬 0 📌 0
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Internet FTW

03.05.2025 21:28 👍 8279 🔁 1424 💬 150 📌 74

Oh no, I’m so sorry to hear this my lovely X Grandparents are so precious 💜

03.05.2025 17:21 👍 1 🔁 0 💬 0 📌 0

So sorry to hear this lovely 💜💜💜

03.05.2025 02:07 👍 1 🔁 0 💬 0 📌 0

🥰

03.05.2025 02:06 👍 1 🔁 0 💬 0 📌 0
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02.05.2025 13:14 👍 27 🔁 8 💬 0 📌 0
OSF

Read @hatporter.bsky.social and @researchpixie.bsky.social preprint (BMC Psychiatry):

“Surveillance is not safety: A response to Dewa and colleagues’ paper about passive remote monitoring technology (Oxevision)”

An important piece:

osf.io/preprints/os...

02.05.2025 07:53 👍 9 🔁 5 💬 1 📌 1

lol sent you an email about something positive 💜

01.05.2025 21:52 👍 1 🔁 0 💬 0 📌 0
Microsoft Forms

Green Paper Consultation, online, email, postal;

forms.office.com/pages/respon...

Consultation.pathwaystowork@dwp.gov.uk

Disability and Health Support Directorate
Department for Work and Pensions
Level 2
Caxton House
Tothill Street
London
SW1H 9NA

18.03.2025 14:49 👍 3 🔁 1 💬 0 📌 0

If the welfare changes do come in, I fear people will be 1. Forced to cause themselves serious harm / injury to be able to survive & score 4 PIP points (because it will be weighted towards physical disability) or 2. Taking their own lives. It will be catastrophic for people with a mental illness.

18.03.2025 16:45 👍 4 🔁 2 💬 0 📌 0

Agreed. It’s a terrible tactic. ‘I’m alright mate’ attitudes play right into their agenda.

18.03.2025 16:40 👍 3 🔁 0 💬 1 📌 0

The basic rate is way too low ffs. Conflating the need to survive (trying to get in to LCWRA because basic rate is too low) with disabled people too ill too work who are already in the LCWRA is F*cked. There are no savings to be made here - they need to increase the basic rate & LCWRA.

17.03.2025 23:56 👍 3 🔁 1 💬 0 📌 0
Preview
“Rise in people with mental illness being driven by real societal challenges and lack of available treatment” says RCPsych President RCPsych President Dr Lade Smith CBE responds to the Secretary of State for Health and Social Care's comments about the overdiagnosis of mental health conditions.

“The significant rise in the number of people being diagnosed with a mental illness in recent years has been driven by real issues that affect us all, such as increases in poverty, housing and food insecurity, as well as loneliness and isolation. ”

www.rcpsych.ac.uk/news-and-fea...

17.03.2025 19:53 👍 36 🔁 28 💬 0 📌 4

Another email sent to my MP about @wesstreeting.bsky.social’s conversation with Laura Kuenssberg. The health secretary is being poorly advised by anti-psychiatrists who peddle myths about diagnosis and the sick role.

16.03.2025 22:22 👍 2 🔁 1 💬 0 📌 0