@renusyndrome.bsky.social is joining Citizen Health to help advance research for families affected by #ReNUsyndrome —making it easier to contribute data and move discovery forward from home: www.citizen.health/ai-advocate/...

#RareDisease #PatientAdvocacy #CitizenHealth #AccelerateCures #ReNUhope

Jane gives to honor her brother, who lived longer because of treatments developed through research. She wants future families to have even more options.

If you want your gift to support the next generation of discoveries, donate at www.kidneycan.org/donate

#GivingTuesday #WhyIGive #AccelerateCures

#KidneyCancer research is moving, but the field still needs stable support. Your donation helps strengthen the entire ecosystem so progress doesn’t slow down: www.kidneycan.org/donate

#GivingTuesday #AccelerateCures

Final day: join Citizen Health by 11:59 PM and be entered into the $5,000 Caregiver Recharge Giveaway.

👉 Join here: www.citizen.health/unlock

#ShareForRare #RareDiseaseCommunity #CaregiverSupport #Neurodevelopmental #Neuromuscular #AccelerateCures

Join Citizen Health by Nov 30 + be entered into the $5,000 giveaway. Centralize your medical records + get clearer answers in seconds. 👉 [www.citizen.health/unlock]

#ShareForRare #TheGreatUnlock #RareDisease #RareCommunity #AccelerateCures #Neurodev #Neuromuscular #BlackFriday

At CBTN, Biospecimen Research Coordinators manage, track, and store the critical samples that #acceleratecures and #advanceopenscience.

TODAY, 7pm ET / 4pm PT:
Learn how families use AI Advocate for reports, IEP prep & provider notes. Sign up: ciitizen.zoom.us/webinar/regi...

#RareDisease #RareParents #Caregiver #Genetics101 #IEP #SchoolSupport #PatientEmpowerment #HealthLiteracy #AIforGood #AccelerateCures

Heading to #NSGC25 in Seattle? Visit Booth 523 to meet Geo + Todd from Citizen Health + learn about our new #GeneticCounselor Ambassador Program 💜

#RareDisease #AccelerateCures

Penelope is using Citizen Health's AI Advocate to generate IEP goals, summarize a hospital stay for a new PCP, and pull lists of past medications they’ve tried. It makes caring for her son with #OCNDS easier.

“You’ve Got to Check It Out!”

#CSNK2A1 #TheGreatUnlock #RareDisease #AccelerateCures

OMG this makes parenting so much easier! 💜🦊 -Nicole, #raredisease mom. Answers. Organization. Peace of mind.

👉 Try it yourself at www.citizen.health/unlock

#ShareForRare #Caregivers #AccelerateCures #Neurodev #specialneeds #FOXG1 #ParentingWins

Families power research! New #SYNGAP1 surgical study shows how your medical journeys can drive discovery 🧬💙 @curesyngap1.bsky.social #DEE #Epilepsy #Neurodevelopment #Seizures #RareDisease #AccelerateCures www.sciencedirect.com/science/arti...