Thank you @maggielevenstein.bsky.social and @johnkubale.bsky.social for this great summary and action call in @theconversation.com on #DisappearingData
Jarvis Chen says small changes to #datasets can be troubling because they're harder to detect. "Figuring out what changes are really meaningful and impactful -- that's a little more difficult, and that's where I think the community needs to come in" and highlight what's urgent.
#DisappearingData
Kastanis: "It's not just about #DisappearingData. Some #DataSets are being #weaponized. States are pushing back on federal attempts to collect data on #SNAP recipients. If people think their #data will be used to punish them, they may stop engaging with the system entirely."
#Webinar
Do we really need the federal government for data?
"Maybe 100 years ago, that's where the expertise was hosted. But now so many people are becoming more and more skilled in #DataScience ... You can answer questions much more efficiently at the local level," Lane says.
#DisappearingData
Lane says #reporters should think about new ways of measurement using the massive amount of available #data. She recommends seeking out subject matter experts at the state level.
#DisappearingData #Webinar
Julia Lane, Professor Emerita at the @nyuwagner.bsky.social, says the quality of #FederalData has been seriously degraded over time. Unemployment metrics were developed during the Great Depression. Fewer people pick up the phone for surveys.
#DisappearingData #Webinar
@jaspar.bsky.social "A lot of things are already backed up. So the concern really has more to do with the #censorship of data, but also -- what comes next?"
#DisappearingData #Webinar #DataJournalism
@jaspar.bsky.social says that as of now, 146 out of roughly 1,500 #datasets have been removed from the #CDC website under the #TrumpAdministration. Others have been altered to replace the word "gender" with "sex."
#DisappearingData #FederalDataSets #Webinar #CDCData
@jaspar.bsky.social Data Editor at @statnews.com: The good news for preserving #data is that "if it existed on the Internet, if it was publicly available before January 20, it is probably somewhere."
#DisappearingData #Webinar
Chen says that despite those efforts, he worries about the future of federally curated data: "There are some kinds of data that can only be collected by the federal government."
#DisappearingData #Webinar #DataJournalism
"The blitzkrieg of the removal of data took us all a little bit by surprise," he continued.
Grassroots efforts to preserve and restore data have been a positive, creating "a kind of decentralization of data that presents an opportunity to think about the democratization of data"
#DisappearingData
Jarvis Chen, Social Epidemiologist at @hsph.harvard.edu: "These attacks on #data ... have to be seen within the larger context of attacks on science and on evidence-based policy making."
#DisappearingData #webinar
"But as we'll also discuss today, a crisis can present opportunities to rethink our flawed data infrastructure. For reporters, we'll hear about strategies to be creative and resourceful in this challenging moment," she added.
#DisappearingData #Webinar #DataJournalism
You'll hear from Jarvis T. Chen, Sc.D., Social Epidemiologist at @hsph.harvard.edu, Julia Lane, Ph.D., Professor Emerita @nyuwagner.bsky.social, Angeliki Kastanis Data Editor at @apnews.com & @jaspar.bsky.social Data Editor at @statnews.com.
#disappearingdata #webinar
If you are a health reporter who likes to ground your stories in data, don't miss this free webinar about how journalists can navigate #DisappearingData at the federal level!
We’ll explore how dismantling federal data systems are reshaping #healthpolicy, obscuring inequities, & limiting accountability & discuss how reporters can still tell accurate, data-driven stories in this shifting landscape.
#disappearingdata #webinar
Quote: “Freedom is the freedom to say that two plus two make four. If that is granted, all else follows.” Attribution: – George Orwell, 1984 (1949)
Quote: “Freedom is the freedom to say that two plus two make four. If that is granted, all else follows.” Attribution: – George Orwell, 1984 (1949)
Quote: “Freedom is the freedom to say that two plus two make four. If that is granted, all else follows.” Attribution: – George Orwell, 1984 (1949)
CDC HIV Page Removed:
web.archive.org/web/20240105...
#disappearingdata
"As you're thinking about #disappearingdata, recognize it may have different implications, depending on the questions you're asking and whether it's just about the past, the trends that you're using, the future and whether you're going to be able to continue doing it," @joshpasek.com said.
Thankfully, there are some folks out there who are preserving government data, like Census records. Article gifted.
@chrislhayes.bsky.social @maddow.msnbc.com
#disappearingdata
wapo.st/3X0HcEc