LIVE at Noon ET! See the progress and partnerships advancing rare disease research and care. https://monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone
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#KidsFirstDRC
Posts tagged #KidsFirstDRC on Bluesky
On #InternationalWomensDay, we thank Dr. Marcia Fournier, Program Director of the Gabriella Miller Kids First Pediatric Research Program.
Her leadership helps build a future where data sharing gives researchers better tools and kids better chances.
#KidsFirstDRC
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March is #NationalKidneyMonth, and Kids First data helps researchers explore genetic drivers of congenital kidney malformations and their links to other childhood conditions.
Explore the Kids First Data Ecosystem: https://monkeylink.co/d3c6ee
#KidsFirstDRC #PediatricResearch
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On #RareDiseaseDay, we honor the families and researchers advancing congenital disorder research. With 67% of Kids First data devoted to these conditions, shared data drives discovery.
#KidsFirstDRC #RareDiseaseResearch
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See how #KidsFirst sparks new discoveries for kids with rare disease. Researchers and families share real progress, collaboration, and what it means for children. RSVP today: monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone
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Connect with researchers and families reshaping scientific discovery to save kids. Register now: https://monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone
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Explore 10 years of impact and read how #KidsFirstDRC researchers turn data into discoveries.
A Decade of Kids First - Kids First https://monkeylink.co/cc5ed7
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The Rare We Share Kids First Community Webinar brings families, doctors, and researchers together for a meaningful conversation in advancing rare disease research and care.
Join Us: https://monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone
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On #InternationalChildhoodCancerDay, we honor researchers using Kids First data to fuel discoveries in brain tumors, leukemia, and more—moving toward better outcomes for every child.
#KidsFirstDRC #PediatricCancerResearch
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Science isn't always about data points. Today, it's about the exceptional women who guide pediatric research at #KidsFirstDRC. #InternationalWomenInScienceDay #February11
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For rare conditions, connection is everything. Register now to help shape the future of #pediatricresearch
https://monkeylink.co/8508c3
#TheRareWeShare #RareDiseaseFamilies #KidsFirstDRC #RareButNotAlone
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Partnerships like ours with the #NationalCancerInstitute Childhood Cancer Data Initiative make discovery go further.
Learn more: https://monkeylink.co/6f3a77
#KidsFirstDRC #CCDI #PediatricResearch
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Sharing knowledge builds a better future for all kids. Learn More: https://monkeylink.co/d2a835
#KidsFirstDRC #TheRareWeShare #CongenitalDisorderAwareness
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Discovery begins with you. Every rare condition adds to our collective understanding. Learn how: https://monkeylink.co/d2a835
#KidsFirstDRC #TheRareWeShare #CongenitalDisorderAwareness
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The power of data from #KidsFirstDRC is driving research to improve children’s lives. Learn More: https://monkeylink.co/d2a835
#TheRareWeShare
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Causes of #CongenitalDisorders are hard to find. #KidsFirstDRC links clues across conditions.
Learn how: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness
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Rare doesn’t mean alone. #KidsFirstDRC is connected by compassion, strengthened by science.
Learn more: https://monkeylink.co/d2a835
#TheRareWeShare #CongenitalDisorderAwareness
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What's next for #KidsFirstDRC? Rich data, advanced tech, and exciting collaborations. Stay tuned for 2026! #ForwardTogether
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Dive into data from over 1900 different disease types and help uncover answers with #kidsfirstdrc. Kids First Data Portal https://monkeylink.co/b7bc75 #KidsFirst
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See the vision for what’s next, shared by Adam Resnick, Mary Marazita, David Teachey, and Ellyn Miller of #KidsFirstDRC on Dec 10. Register for the #WinterWebinar: https://monkeylink.co/6462d6
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We’re thankful for the #KidsFirstCommunity, which relentlessly works toward a future where every child can thrive. #ThankfulForData #Thanksgiving #PediatricCancer #KidsFirstDRC #CancerResearch #Hope
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Catch highlights from the vibrant #KidsFirstDRC Data Discovery Exchange scientific poster event at #ASHG2025, co-hosted by INCLUDE Data Coordinating Center: https://monkeylink.co/4be6e2
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Video from the “ASHG 2025 Data Discovery Exchange, hosted by Kids First and INCLUDE” youtube.com/watch?v=g67z...
#kidsfirstDRC #TNTurnerLab @washugenetics.bsky.social #genomics #genetics #denovo
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Don’t miss all the information, insights, and discoveries shared by #KidsFirstDRC at #ASHG2025. Read the recap here: https://monkeylink.co/376fea
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#KidsFirst datasets include more than 38,000 participants across multiple conditions, helping researchers make #breakthroughs. #KidsFirstDRC #PediatricResearch
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#Opendata fuels discovery. Using #KidsFirstDRC, researchers have published over 200 studies, unlocking clues about childhood cancer and rare disease. #OpenScience #KidsFirst10Years
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On Dec 10, see how #KidsFirstDRC is fueling the momentum of pediatric research. Register for the #WinterWebinar: https://monkeylink.co/6462d6
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What if we had the data to save a life?
Kids First is providing new hope for research and care, one child at a time.
Watch the full video and see what’s possible: https://monkeylink.co/9343c1
#KidsFirstDRC #PrecisionMedicine #PediatricResearch #WhatIf
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The data-sifting tool makes it easier for #KidsFirstDRC researchers to find what they’re looking for, faster than ever. Learn how: https://monkeylink.co/726f50
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At the NCI Data Sharing Symposium, David Higgins showed how Kids First tools make pediatric cancer data more open, connected, and ready for discovery.
#KidsFirstDRC #OpenScience #PediatricResearch
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