Having a child who is
#MedicallyFragile #SpecialNeeds
#FloatingHarborSyndrome means you have many heart aching days with lots of labs. Yet my Ethan still smiles and is happy.

CDC: Too Few Older, At-Risk Adults Receive Antiviral for COVID-19 | Contagion Live Despite increased risk for severe outcomes, most older adults and those with comorbidities do not receive antiviral treatment for COVID-19.

#MedicallyFragile #MedicallyVulnerable #ChronicIllness #ProtectOurSeniors
#GetVaccinated #VaccinationsWork #COVIDbooster #ProtectOthers #CommunityCare #PublicHealth #MaskUp #WearAMask

*CDC: Too Few Older, At-Risk Adults Receive Antiviral for COVID-19
CL

3-6-26
www.contagionlive.com/view/cdc-too...

So the thing about having a medically fragile child who is recovering from surgery, sepsis, blood infection and is housebound…so is the mom. It’s been just over 2 weeks and likely 1-2 more weeks.

#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome

#MedicallyFragile #MedicallyVulnerable #ChronicIllness #ProtectOurSeniors #GetVaccinated #VaccinationsWork
#FluShot #COVIDbooster #ProtectOthers #CommunityCare
#PublicHealth #MaskUp #WearAMask

📢 "Vibes" about your immune system won't protect you. Get a flu shot!

www.newsweek.com/psychologist...

Well it’s hospital life once again. My son made it 3 days into 2026 before being hospitalized. I hoped this would be his first of 20 years of no hospitals or no surgeries but that’s not in the cards for a child who is medically fragile

#MedicallyFragile
#FloatingHarborSyndrome

#MedicallyFragile #MedicallyVulnerable #ChronicIllness #ProtectOurSeniors
#ProtectOthers #MaskUp #WearAMask #CommunityCare #PublicHealth #FluShot #FluVaccine #FluSeason #MOMsky

*It is NOT too late to get a FLU SHOT! The dominant strain prediction may have been off, but it STILL OFFERS PROTECTION.

A New, Potentially Severe Flu Variant Is Spreading in the US. Watch for These Symptoms A mutated strain of influenza A, H3N2 subclade K, is surging worldwide, sparking concern about a severe flu season in the U.S. Here's what to symptoms to look out for.

#MedicallyFragile #MedicallyVulnerable #ChronicIllness #ProtectOurSeniors
#ProtectOthers
#FluShot #FluSeason
#MaskUp #WearAMask
#StaySafe #DontWaitVaccinate
#CommunityCare
#PublicHealth #PatientSafety
Keep this in mind when planning your holiday get together.

12-4-25
www.today.com/health/cold-...

Behind every caregiving journey is a story of love, courage, and sacrifice. This month, we celebrate and support the caregivers who make it all possible.

LEARN MORE: curegm1.org/about-gm1

#curegm1 #raredisease #caregivers #medicallyfragile

a woman in a pink dress is crying ALT: a woman in a pink dress is crying

Ct results shows degenerative discs in his entire spine like that of an elder man.

My Ethan is only 19.

#MedicallyFragile #SpecialNeeds
#FloatingHarborSyndrome

It’s been a long week for my little man going in and out of doctors, labs, urgent care, and ER.

#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome
#StrongAndBrave

My son is singing (he is nonverbal) and playing guitar. The house is filled with noise and I love every second of it.

#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome #Nonverbal

Saw The Naked Gun movie and it was funny until they had to use the R word. Not so funny when my son who is #MedicallyFragile #SpecialNeeds had to endure hearing that shit.

#TheNakedGun

Many going back to school including my daughter

For my #MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome son who has been ill for weeks and dropped to 62 lbs, health is always the priority

Sad for the experiences he misses but grateful for my miracle being strong & brave

Had a nightmare my son was in the hospital with serious medical issues. I was doing everything to get there but things kept preventing me

I wonder if having a
#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome child means the medical trauma will always result in nightmares

After 19 1/2 years of care, my son’s pediatrician retired and he was transferred to adult care. Very scary since he has a rare diagnosis, had 24 surgeries/5 heart surgeries/heart attack & many medical complications. I am not ok.

#MedicallyFragile #FloatingHarborSyndrome

Some days when your
#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome child has medical issues whatever errands and “to do” list you have to get done today will just have to wait. His needs come first.

Today is that day.

Never gets easier watch my son go through it.

#MedicallyFragile #SpecialNeeds
#FloatingHarborSyndrome

Doctor appt for my little man, labs, and a breathing treatment is not the way to start a weekend.

#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome

This is my day today. It isn’t fair.
#MedicallyFragile #SpecialNeeds
#FloatingHarborSyndrome #FHS #ASL #NonVerbal #CerebralPalsy #StrongAndBrave

a medical id button and a sos button are shown ALT: a medical id button and a sos button are shown

Pssst .... Update your/your child(ren)'s #MedicAlert bracelets, #EmergencyApp, #EmergencyContacts, etc. & back up your #MedicalRecords ( #DigitalCopies #Smart911 #PersonalFiles #PersonalDocuments)

#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile

Having a child who is #MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome who has doctors, surgeons & specialists in just about every medical dept there is, it is exciting to see all the newly #Match2025 doctors & hopefully more become #FHS experts.

Best of luck! Congrats!

Replying to @Caroline and Claire❤️ YES. TikTok video by stephrunsherlegsandmouth

TLDR: Apparently "presume competence" only applies to them, not all us rando illiterate unwashed peasants.

#Moms #Mothers #Caregivers #KinshipCare #RelativeCaregivers #MomLife #Parenting #WhiteSaviorism #Ableism #DisabledChildren #MedicallyFragile #MedicallyComplex

www.tiktok.com/@stephrunshe...

And this is what happens when your child is #MedicallyFragile #CerebralPalsy
loses balance, falls, and cracks screen and bends iPad but needs it to communicate and for access. Again.

a picture of pink flowers with the words hello march written on it ALT: a picture of pink flowers with the words hello march written on it

Maybe it's all the coffee I drink during Zoom trainings but I swear I get out of these sessions feeling so optimistic, rejuvenated, and re-committed to #CommunityCare and #CommunityBuilding through supporting #Families of #MedicallyFragile #MedicallyComplex, and #DIsabledChildren.

Look who is featured in the San Diego Sheriff Department news & on the Special Olympics website-my Ethan

This was in 2016 after Ethan had 3 heart surgeries & heart attack that year

#MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome #SpecialOlympics #SOSoCal #StrongAndBrave

Got Wicked tix 4 months ago. 
Now 5 days post op from oral surgery, face bruised/swollen, Tylenol/antibiorics, my son after his 24th surgery signed he wants to go to the show with his sister/mom/dad. Music/theatre is the therapy/medicine he needs.
#Wicked #MedicallyFragile

Went to pick up my medically fragile child’s meds today. Couldn’t. Thank you Trump.

#Disability #MedicallyFragile #Epilepsy #IHateYou

I just want to understand why this needs to happen all for the sake of votes and money in someone else's pocket. #LGBTQ #transsafety #children #childloss #medicallyfragile #adrenaldisorders #AmericanMedicine

I fight for her. I’m scared of this man in charge again.

Only the vulnerable will be at risk. But your "only" is my Everything. #HighRisk
#medicallyfragile

I love giraffes so much. Reminds me of my son when he was small. Ethan is #MedicallyFragile #SpecialNeeds #FloatingHarborSyndrome #NonVerbal
Beautiful, strong, mighty, doesn’t make a sound but is so expressive.