My psychiatrist is my consultant, not my boss.
I’m the CEO of my health.
When we work together as partners, I get better results. 🩺
#MentalHealthAdvocacy #PatientPower #BipolarTreatment #Bipolar

Read today’s Club post: open.substack.com/pub/speaking...

Sen. Roger Marshall: “Show patients the prices & let them be consumers again!”  GOP healthcare reforms aim to empower patients, cut costs & boost transparency. #HealthcareReform #PriceTransparency #PatientPower #RogerMarshall #LowerHealthcareCosts

Hate needles? Tell us why TODAY. 💉 Our study on needle fear is closing soon and we need your anonymous input to drive change for the infusion community.

#Trypanophobia #PatientPower #InfusionInsights


Make your voice count: zurl.co/GQrwH

#PatientPower #Lupus #RA #ChronicLife #InfusionTherapy

Martha’s rule now in operation at every acute hospital in England Family, marking what would have been Martha’s 18th birthday, welcomes adoption of system that gives patients right to request care review

Martha’s rule now in operation at every acute hospital in England

#PatientPower #CareReview #NHS

www.theguardian.com/society/2025...

Yes, you can insert your own speculum.
#PatientPower #InformedConsent

How to advocate for yourself in the doctor’s office.
💬 Ask questions. Bring a buddy. Take notes.
#AdvocateForYourself #PatientPower #KnowYourRights

If your dentist rushes a root canal—stop.
Get the X-rays. Get the notes. Get a second opinion.
Overtreatment is real. And sometimes irreversible.
#HealthLiteracy #DentalCareTips #ReportFraud #PatientPower
#EthicsInCare #DentalFraud

OP-ED: Good things happening in cancer research, cancer care Precision medicine aims to prevent or treat cancer by considering genetic features, environments and lifestyle for each patient

a good afternoon read - take a look❤️

www.saltwire.com/newfoundland...

#NewfoundlandAndLabrador #AtlanticCanda #PatientPower #PatientLeaders

Your support empowers GRACE to deliver vital cancer info, helping patients and caregivers take control of their health. THANK YOU! 🌟 #PatientPower #GRACE #CancerEducation #ASCO2025

In Your Own Words: The Emotional Impact of Cancer and Loss – Survey Results - ACPMP Patient Power recently invited cancer patients to share their individual thoughts, feelings, and experiences from diagnosis and beyond. The responses were then reported in the article below. They are ...

So many cancer patients share the same emotional struggles, yet often feel alone in them. 💛

#PatientPower shares real insights in this survey from those impacted by cancer and loss.

#NoOneFightsAlone #cancersurvivor

Happy International #ClinicalTrials Day! 🎉

Did you know that these trials are key in making sure new treatments are safe and effective? A big thank you to all the volunteers and professionals who make this possible. Your work paves the way for healthier tomorrows. 🙌

#PatientPower

Do you want to help find a cure for cancer? Donate your data and biospecimens Cancer patients can be part of the race to find a cure by opting to donate their data and lab samples to a new biorepository.

Want to help cure cancer? It starts with you. Donate your data and biospecimens through the Universal Consent Registry—because breakthroughs begin with brave volunteers.
#CancerResearch #TCSC #DonateForDiscovery #PatientPower #MedicalBreakthroughs

health.ucdavis.edu/news/headlin...

Episode 23 – Patient-oriented research from a patient partner & leader perspective Public Interest Group on Cancer Research · Episode

People with lived experiences are leading the way to patient-centered health research❤️

Listen to Lisa Ridgway - how she got interested in patient-oriented research and how she accomplish her goals

#PublicEngagement #Podcasting #NewfoundlandAndLabrador #PatientPower
open.spotify.com/episode/4otZ...

This #WorldLiverDay, we stand strong with patients across Europe!
With @liveraim.bsky.social, we’re pioneering early detection & personalized care for liver disease.
Innovation. Hope. Action.

#LiverHealth #PatientPower @ihieurope.bsky.social #HorizonEurope #LIVERAIM @jvlazarus.bsky.social

#PatientPower #SlowToWin

Biomarker Testing Insights for HR+/HER2- Breast Cancer Margaret Gatti-Mays, MD, from The Ohio State University – The James, discusses the insights gained from biomarker testing and the ideal timing for it.

Patient education on #BreastCancer #Subtypes with #PatientPower @osuwexmed.bsky.social @osucccjames.bsky.social #bcsm www.patientpower.info/video/breast...

How Crowdsourcing is Revolutionizing Medical Diagnoses Imagine this: your body is falling apart, but no one can tell you why.You’re in constant pain, bouncing from one specialist to another, each appointment feeling like a broken record of tests, shrugs, ...

“Crowdsourcing is transforming medical diagnoses by leveraging collective knowledge, AI, and patient-shared data. Could this be the future of faster, more accurate healthcare?

#UnremarkableMe #EDS
#Crowdsourcing #chronicillness #PatientPower
#EhlersDanlos

www.unremarkableme.com/post/how-cro...

Join us on Feb 28th for a free webinar about patient engagement in health research! ❤️

Register here: bit.ly/healthy-disc...

@NL_SUPPORT_Unit @derrickbishop2

#NewfoundlandAndLabrador #PublicInterestGroupOnCancerResearch #PatientEngagement #HealthResearch #PatientPower

*Love* this idea. #PatientPower #PatientKnowsBest

Frankly, I’m disgusted that this was ever a policy to begin with. Who are these people? We all feel pain. How would they like to go through surgery without anesthesia? Is it any wonder that people want a #EatTheRich? #HealthcareForAll #PatientPower

Shoutout backatcha #BeLikeLight❣️ @downing.bsky.social @lightcollective.bsky.social

Care about data privacy, patient rights, and data ethics? Then follow Andrea & the Light Collective #BeLikeLight #OpenData #OpenScience #HIPAA #PatientAsCEO #PatientPower

@JohnSharp I luv this blog! Family engagement is the glue that holds #patientpower together in many cases. We need #data too!!. #NHITWeek