Discussion paper and guidelines for the ethical use of technology for and by people with dementia

Learn more about the Working Groups: https://www.alzheimer-europe.org/about-us

Geschlecht, Gender und Sexualität im Kontext von Demenz: Sensibilisierungsleitfaden für Fachkräft e im Gesundheitsund Sozialwesen

Sexe, genre et sexualité dans le contexte de la maladie d’Alzheimer et des maladies apparentées : Guide de sensibilisation à l’attention des professionnels de santé et du secteur médico-social

People with #dementia and carers are experts in lived experience. This #BrainAwarenessWeek, we recognise that #PublicInvolvement shapes research, policy and awareness. #EWGPWD #EDCWG

Learn more about:
Technology use:
bit.ly/4sSR5Bv
Sex, Gender and Sexuality
bit.ly/4s9DmpJ (DE)
bit.ly/4seWClT (FR)

Our public partners and contributors are vital to making health and care improvements evidence-based and equitable. We couldn't do what we do without them 🙌

www.bristolhealthpartners.org.uk/news/celebra...

#SharedCommitment #4thAnniversary #PublicInvolvement #PPI
@hralatest.bsky.social

🎉Today we're celebrating the fourth anniversary of the Shared Commitment to Public Involvement in health and social care research.

Find out what we've been doing to help drive up standards in research: www.ukodtrn.org/au-news/cele...

@hralatest.bsky.social #SharedCommitment #PublicInvolvement

This image shows a person holding a certificate in front of a seated audience at an NHS Scotland event. The text highlights the "Third Patient and Public Involvement Event" as a success in community building. It includes a published date of March 5, 2026, and a link to more information at www.nrs.org.uk/news. The NHS Research Scotland logo is visible.

A third annual Patient and Public Involvement (PPI) Event held in Stirling this week has been hailed a success after more than 170 gathered for the landmark interactive showcase. #PublicInvolvement

Read the full story 🔗 https://bit.ly/4sxe9Wd

Mount Airy schedules annexation hearing after hours of public comment opposing sports-complex plan Mount Airy officials set a public hearing for proposed annexation of the Warfield property after residents raised traffic, water and town-character concerns tied to a proposed private sports complex. The council emphasized the hearing is a procedural step; final annexation would require further county and state review.

Mount Airy residents are rallying against a proposed sports complex that could drastically alter their community, raising serious concerns about traffic, water resources, and neighborhood character.

Get the details!

#MD #MarylandCommunity #CitizenPortal #CommunityVoice #PublicInvolvement

UNIVERSITY of STIRLING Using LEGO® to discuss data research with Polish community Dr Piotr Teodorowski, Dr Jason Adai, Reshma Punjabi and Or Malgorzata

This is the most fun-sounding project so far today.
#PublicInvolvement

Public Engagement Fund (2024) After a successful pilot in 2022/23, RDS Public Engagement Fund returned in 2025/26, with a total of £30,000 available to support public engagement and involvement with data science. Organisations applied for £1,000 to £10,000 to deliver new work or build on existing projects. Projects ran from January 2025 - January 2026 3

Rachel Edwards from Research Data Scotland talking about their public engagement fund, and the projects they supported.
#PublicInvolvement

Health and Care Research Wales strategic priorities for public involvement • We partner with the Five Nations Public Involvement Group to overcome barriers to public involvement. • We provide tools to help researchers include meaningful public input based on UK Standards. • We collaborate with communities and organisations to boost diverse participation in Welsh research • We've created an action plan to reduce involvement barriers and encourage more people to shape research in Wales

Now Peter Gee, from Health and Care Research Wales, talking about how they support #PublicInvolvement

Two-Eyed Seeing: The Ethics of Ethical PPI from Western and non-Western Viewpoints Lessons from the Global Heritage Women for Health Equity Project

Relational Care Trust building? Race consciousness? Hidden labour? Intersectionality? Reciprocity? Power Dynamics? Supremacy? Restorative vs Extractive?

Creating an 'ethical space' Physical and psychological safety Relational Care Our Sharing Circle Cultural resonance? Sitting outside the circle?

Now Leila Neshat Mokadem talking about ethical and inclusive PPI.
#PublicInvolvement

Last session was me and Iona Beange talking about Depression Detectives, so I couldn’t skeet. #PublicInvolvement
Info about the project here blogs.ed.ac.uk/depressionde...

Emma makes the good point that researchers often do things at last minute, then just ask PPI contributors to feedback on plain English summary. When they should work with them as partners to write grant applications. #PublicInvolvement

Embedding patient voices in bowel cancer research, from Dr Emma Parsons. #PublicInvolvement

If your approach doesn’t work for your publics then you change the project, you don’t try to change your publics. #PublicInvolvement

Discussion about whether there should be training for public contributors. People saying positive things about that.
I feel that’s the wrong approach. The job is to make the PPI activities work for ordinary people. We should train researchers to get better at that. #PublicInvolvement

Clark County details ADA self-evaluation and opens public survey; reports to include barrier inventories and cost estimates Clark County Parks and Nature staff said consultant MIG has nearly completed site assessments for an Americans with Disabilities Act transition plan, announced a public survey open through March 6, and said draft plans will go to the public and then to the county council for adoption.

Clark County is taking major steps to enhance park accessibility for everyone by launching a public survey and creating detailed reports on barrier removal.

Learn more here!

#ClarkCounty #WA #CitizenPortal #BarrierRemoval #AccessibilityInitiatives #ClarkCountyParks #PublicInvolvement

Engagement and Involvement Officer | Adolescent Health Study | CharityJob Apply now for Engagement and Involvement Officer. , £35,000 - £42,000 per year, find a career with meaning today

We're looking for an Engagement and Involvement Officer to support meaningful involvement of young people, families and schools in a UK-wide youth health study.

💷 £35,000–£42,000 | 🗓 Closing 29 March 2026

👉 www.charityjob.co.uk/jobs/adolesc...

#YouthEngagement #PublicInvolvement #HealthResearch

Planning update: 32 active cases, quarry rezoning, sports complex and comprehensive‑plan timeline The planning supervisor reported about 32 active development cases, highlighted a ~10‑acre quarry rezoning request near Shaffer's Crossing, a proposed 32,000 sq ft indoor sports complex, church site‑development updates and said the comprehensive‑plan hearings are tentatively set for spring.

Discover the latest on 32 active development cases, including a major quarry rezoning and a new indoor sports complex set to transform the community!

Click to read more!

#CO #LandUseRegulations #CitizenPortal #PublicInvolvement

Committee adopts HB 433 to let constituents formally petition OPLER; medical association warns of politicization Lawmakers adopted a first substitute and passed HB 433, enabling constituents to submit substantive review requests to the Office of Professional Licensing Review (OPLER) and requiring notification of legislators; the Utah Medical Association testified in opposition, warning it could politicize OPLER.

A new bill has passed that empowers Utah residents to formally petition the Office of Professional Licensing Review, stirring debate over potential politicization of the agency.

Click to read more!

#UT #CivicAccountability #CitizenPortal #LegislativeTransparency #PublicInvolvement

Two researchers and three young people sat around a meeting room table, with a flipchart behind them on which the words 'Herts YPAG' are written

Great @nihrarcs.bsky.social webinar yesterday on evaluating #PublicInvolvement with children & YP. Brilliant presentation from my @hertsresearch.bsky.social colleagues Lauren Denyer & @helenabnett.bsky.social, & members of @hertsypag.bsky.social. Thank you to everyone who attended & contributed 1/2

Oregon City staff briefs commission on short‑session bills; housing omnibus and notice‑reduction provisions draw scrutiny Community Development Director Kelly Hart presented a short‑session primer linking commission goals to bills being tracked, highlighting housing omnibus proposals that would shorten notice and reduce appeal rights and several infrastructure and economic development bills the city will monitor.

Oregon City is navigating critical legislative changes that could reshape local housing processes and public involvement in a matter of weeks!

Click to read more!

#OregonCityClackamasCounty #OR #EconomicGrowth #InfrastructureDevelopment #PublicInvolvement

Committee postpones decision on transmission-line information resolution after members call wording 'negative' Richland County committee discussed a proposed Dairyland/TransSource high-voltage transmission line and postponed action on a resolution requesting details, with members asking for clearer wording and maps of existing corridors and proposed routes.

Richland County's Natural Resources committee is treading carefully on a proposed high-voltage transmission line that could reshape local landscapes and property values.

Get the details!

#RichlandCounty #WI #CitizenPortal #LandUse #EnvironmentalImpact #PublicInvolvement

Scotia‑Glenville board tables decision on Glenwarden Elementary after parents urge more data on special‑education, fences and boundaries After more than two hours of public comment and board debate over a superintendent recommendation to close or repurpose Glenwarden Elementary, the board voted to table the recommendation and requested further redistricting and transportation analyses and clarifications on special‑education placements and facilities.

After a heated public debate, the Scotia-Glenville Board of Education has postponed a decision on the future of Glenwarden Elementary, amid concerns for special education services and student safety.

Get the details!

#NY #NewYorkEducation #SpecialEducation #PublicInvolvement #CitizenPortal

This is booking up fast - almost 200 people attending so far! If you're thinking of coming & haven't booked yet then do so soon.

@nihrarcs.bsky.social @arceastofengland.bsky.social @arc-southlondon.bsky.social @penarc.bsky.social @elspethma.bsky.social #PPI #PublicInvolvement #InvolveYoungPeople

INSPIRE Portsmouth Public Involvement Funding for MRC Grant Development This scheme supports University of Portsmouth researchers in co-creating high-quality research proposals for the MRC. By providing targeted fundin...

Excited to launch INSPIRE Portsmouth for the MRC!

Funding to help researchers build community partnerships, embed public involvement, and strengthen ideas for future MRC bids.

Info: sites.google.com/port.ac.uk/i...

#PublicInvolvement #ResearchFunding #MRC #CommunityEngagement #Portsmouth

👋 Meet Alice, our amazing student at #ThePeoplesReview. She is looking to speak with anyone who has been involved in The People's Review so far, to capture your experience, reflections and learnings. Interested? Please email thepeoplesreview@universityofgalway.ie

#CitizenScience #PublicInvolvement

✅ Open until Feb. 26, 2026
✅ Available in English & Spanish
Your feedback helps improve how the Tri-Party agencies share information and engage with you about Hanford cleanup efforts.
📲 Take the survey and learn more: forms.office.com/g/m3iKhmBc7k
#HanfordCleanup #PublicInvolvement #YourVoiceMatters

Info on the wider @nihrarcs.bsky.social #PublicInvolvement series including recordings of previous webinars: arc-eoe.nihr.ac.uk/importance-p...

@arceastofengland.bsky.social @penarc.bsky.social @arc-southlondon.bsky.social
#PPI #PPIE

Flyer. Importance of Public Involvement Research Webinar Series. Webinar 4. This webinar will share findings from two evaluations of young people’s advisory groups (YPAGs), both co-produced with young group members. It will highlight lessons for meaningful and inclusive Patient and Public Involvement and Engagement (PPIE) with children and young people (CYP) and explore practical implications for PPIE professionals, researchers and CYP involved in research. Chaired by Dr Stan Papoulias, PPIE research theme lead at NIHR ARC South London. Facilitated by Dr Elspeth Mathie, Inclusive Involvement in Research theme lead at NIHR ARC East of England. Speakers: Dr Louca-Mai Brady, Reader in Youth Involvement and Health; Dr Helen Abnett and Lauren Denyer, Research Fellows, UH; and young members of the Herts YPAG. Who should attend? Anyone who is interested or involved in CYP’s involvement in research, including young people. Tuesday 17th February, 12:00-13:30. Register now!

📣 @nihrarcs.bsky.social #PPI webinar: Evaluating #PublicInvolvement with children & young people 🌟17/2/26
Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social

Info & booking: www.eventbrite.co.uk/e/involving-...

Burbank Parks Board approves arts grants and appointments, hears World Cup and Scientology-related public comments The Parks and Recreation Board on Jan. 20 approved $61,500 in community arts grants, appointed two volunteers to the Burbank Athletic Federation, set two 'dark' months for 2026, and heard public concerns about alleged Scientology-linked groups seeking involvement with city programs.

The Burbank Parks and Recreation Board just approved $61,500 in arts funding while addressing public concerns over potential ties to Scientology groups—what's next for the community?

Click to read more!

#BurbankLosAngelesCounty #CA #VolunteerAppointments #BurbankParks #PublicInvolvement

Whoa😲 "DHSC is standing down the NIHR Maximising Impact and Public Partnership contract. Teams across the NIHR Coordinating Centre and wider NIHR community will continue to embed Impact and Inclusion into everything they do":
www.nihr.ac.uk/about-us/wha...

#PPI #PublicInvolvement