Doctor Raises Awareness for Hypermobility Spectrum Disorder - Stanford Medicine Children’s Health Blog Mekhla Varma, MD, discusses Hypermobility Spectrum Disorder (HSD), a little-known condition affecting connective tissue throughout the body.

Representation is important and so is awareness.

#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Chronic Illness and Friendship Chronic illness can create barriers to making and keeping friends. Learn why this is so and ways to challenge these barriers.

Chronic illness can make a lot of things more challenging, including friendship.

#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Don't make these mistakes when using an air purifier this hay fever season Air purifiers can ease your allergy symptoms, but only if they are used correctly. Here are 5 common mistakes to avoid this spring, according to experts.

"We spoke to Melanie Carver, chief mission officer of the #Asthma and #Allergy Foundation of America (AAFA), who offered some advice on the mistakes to avoid when using an #AirPurifier to reduce #HayFever symptoms.": buff.ly/UvCtILa

via @livescience.com
#allergies #MCAS #AirFilter #ChronicIllness

“Ehlers-Danlos Syndrome, Tui Na, and You” Revisited (Some Thoughts on the OG Blog Post) It seems unbelievable when I look at it, but the first blog post I wrote about tui na and EDS went live in September of 2017. …

My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Are you taking extra good care of yourself during the spring season?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

What I treat.

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

Health coaching, Edu-coaching, Consultation: The Which and Why and When for People with Ehlers-Danlos Syndrome Working with a health coach can be one of the most affirming, valuable, inspiring things you can do when you decide that yes, it i…

They're similar but not exactly the same. Which resonates more for you?

#BlogPost #HealthCoach #EduCoach #Consultations #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Are you taking extra good care of yourself during the spring season?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

A promotional graphic with a calm lake landscape and text banners at the top and bottom. The main photo shows a person sitting on a rocky shoreline facing a wide, still lake, with tree-lined banks on both sides and early autumn colors (greens with some reds and yellows) under a cloudy sky. Text at the top on a teal background reads: “The Silence After Survival...” A circular logo at the top left reads: “EDS Awareness” and underneath: “Ehlers-Danlos Syndromes” Text at the bottom on a teal background reads: “Guest post by Debbie Hellenbrand” Below that: “www.chronicpainpartners.com"

The Silence After Survival - Guest post by Debbie Hellenbrand on surviving anaphylaxis with caring help for once…

buff.ly/o1idmfK

#EDS #hEDS #HSD #MCAS #masto #zebras #Spoonies #MedX

Often seen, rarely recognized: mast cell activation disease – a guide to diagnosis and therapeutic options

By Lawrence B. Afrin et al.

tandfonline.com/doi/epdf/10....

Annals of Medicine Volume 48, 2016 - Issue 3
#MCAS #MastCells

What is the evidence for MCAS in long Covid? - Dr Bethan Myers YouTube video by PoTS UK

What is the evidence for MCAS (Mast Cell Activation Syndrome) in long Covid?

Dr Bethan Myers 7/1/2022

youtube.com/watch?v=KjVE...

YouTube, PoTS UK

#COVID19 #COVID #LongCovid #MCAS

Long Covid + Histamine / MCAS - Dr Tina Peers in conversation with journalist Nicola Haseler YouTube video by nicola haseler

Long Covid + Histamine / MCAS (Mast Cell Activation Syndrome)

Dr Tina Peers in conversation with journalist Nicola Haseler

youtube.com/watch?v=vr2b...

YouTube, nicola haseler 10/16/2020

#LongCovid #MCAS #Histamine

Living with MCAS always requires strategy but during the spring? That much more so.

buff.ly/cxiajEs

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

A posca pen drawing of a ball and chain

Getting my feelings about health into a drawing ♿️

#pwd #schizoaffective #mcas #pnes #dysautonomia #bipolar

Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

Got puffy lumps and fat pockets that may even hurt? It could be lipedema.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema
💕 #Wellness

From Ehlers-Danlos Syndrome and Gastroparesis Diagnosis to Successful Feeding Tube Business Owner Anna Hörster’s Inspiring Journey

Yes, gastroparesis can be quite serious and--no surprise--it is not necessarily rare amongst the hypermobile community.

#EDS #MCAS #POTS #Gastroparesis #ChronicIllness #GutHealth #HolisticHealth
💕 #Wellness

Es brauchte nur einen Tag komplett zuhause
Und schon wird meine psyche bald verrückt vom "nix tun"

Mein Körper dagegen sieht das anders.
Seeehr anders 🙄

Die 2 werden sich lieben die nächsten Tage 🤪

#chronischKrank #EhlersDanlosSyndrom #SFN #SmallFiberNeuropathie #mcas #Kptbs #dis

Dysmotility, Anyone? (Gastroparesis & hEDS) The word paresis is of Greek origin and it indicates letting go of or weakening or slackness of muscle.  It refers to partial paralysis rather than a complete stopping of movement (para…

When your digestion is slow or even just about stopped...

#BlogPost #EDS #MCAS #POTS #Gastroparesis #ChronicIllness #GutHealth #HolisticHealth 💕 #Wellness

Spring can be extra special when you live with MCAS.

buff.ly/cxiajEs

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth 💕 #Wellness

What Causes Hypermobile Ehlers Danlos Syndrome? (A Summary of Theories) What is going on with my body? … Why is this happening to me?  … Hypermobility?  Hypermobile Ehlers Danlos syndrome…what is that?  And what causes it? … Peopl…

There are genetic factors (& researchers are finding out more & more every day) but there's also a few other potential causes for hypermobile Ehlers-Danlos syndrome.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness

Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS) Have you ever thought about the difference between mindful eating and intuitive eating?  They are not the same thing, but both can be helpful approaches to nutrition when a person lives with E…

Listen to your gut. Trust it.

#BlogPost #GutHealth #Nutrition #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa 💕 #Wellness

Ich bin nur froh,
Dass ich immer frühzeitig anfange mich zu kümmern,
So habe ich wenigstens ein kleines Puffer.
Das rettet mich mal wieder.

Auf jeden fall habe ich diesen Teil des Krank seins echt nicht vermisst 🙄

#ehlersDanlosSyndrom #hEDS #SFN #MCAS #kptbs #dis #piccline #Gastroparese

What Is Hypermobility? Learn about hypermobility, its causes, symptoms, types like hEDS and HSD, and how it can be managed with a multidisciplinary care approach.

It's not rare, for one thing.

#EhlersDanlosSyndrome #EDS #MCAS #POTS #ChronicIllness #HolisticHealth
💕 #Wellness

Wirklich klappt...
-Insbesondere nach gestern 🙄-

Und so ganz kann ich es immernoch nicht fassen.

Ich freue mich.
Und ich bin unfassbar dankbar,
Dass das medizinische Team das möglich gemacht hat

#EhlersDanlosSyndrom #Mcas #SmallFiberNeuropathie #Motilitätsstörung #kptbs #dis #hEDS #Gastroparese

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

How does spring hit you when you live with MCAS?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, men have Ehlers-Danlos syndrome too. It's not only a women's issue by any means.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Spring has a special resonance when you live with MCAS.

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

Gastroparesis Symptoms, Treatment, Causes | UCLA Medical School Learn all about the complexities of gastroparesis—including symptoms, causes, and treatments—with UCLA gastroenterologist Dr. Craig Gluckman.

Gastroparesis is serious & it can be complicated. Learn more about it here.

#EDS #MCAS #POTS #Gastroparesis #ChronicIllness #GutHealth #HolisticHealth
💕 #Wellness

I was in the gym today, the first time since many months. I had to be super careful not to trigger mast cell activation, the last time I had a crash directly afterwards.
It worked.
Being slightly optimistic but still scared. Too many negative outcomes these last years.

#mcas #chronicillness

Ich check nich warum ich die "chinesische Gemüsesuppe" von WELA vertrage?! Da ist sowohl Chili als auch Ingwer dran (kein Soja zumindest, was ja sonst an asiatischen Fertiggerichten immer dran is) aber die beiden allein sind sonst sowas von der Tod für mich. Nur hier nich??

#MCAS #Histamin #Vegan