Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

My #AxSpA Story for @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

#MySeveralWorlds #CarrieMarshall

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life ...

Carrie shares her story about life with D2T #axSpA. She talks about treatment-resistant her arthritis. Her site #MySeveralWorlds is a patient centered hub that assists folks who are chronically ill & disabled.
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...

Via @arthritischeryl.bsky.social

Navigating Taiwan's healthcare system: with Carrie Kellenberger - Rti In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie Kellenberger about h...

In this episode of Oh, I Didn't Know That, Amber talks with Carrie, author of #MySeveralWorlds, about navigating Taiwan's healthcare system as a foreigner with #AutoimmuneDisease.
Head to part 1 to hear Carrie's story with #AxSpA.
🔗
www.rti.org.tw/en/programne...

@radiotaiwan.nzcow.com

VIEWPOINT – Saturday, 21 March
Rethinking structural progression in axSpA and the need for a balanced approach, presented by Xenofon Baraliakos.

🔗 www.asas-group.org/the-2026-asa...

#ASASCoreCourse #axSpA

Did you know?

Axial spondyloarthritis #axSpA is more frequently diagnosed in men, who show higher radiological progression, while women experience higher disease activity scores and extra-articular manifestations. ​

#GiveToGain #Women
🙋🏼‍♀️Committed to addressing gender disparities in research

VIEWPOINT – Saturday, 21 March
Family planning in SpA: treatment implications for healthy mothers and babies, presented by Anna Moltó.

🔗 www.asas-group.org/the-2026-asa...

#ASASCoreCourse #axSpA

“Many people assume that #AxialSpondyloarthritis is just bad #arthritis. It’s not. It also affects your eyes, skin, organs, your vascular system, and your heart.”: buff.ly/JABz2LB

by @carriekellenberger.bsky.social
#ChronicIllness #AxSPA #systemic

Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA

@asintfed.bsky.social
@gohealio.bsky.social

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life…

“In episode 150 of The #Arthritis Life #Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” #AxialSpondyloarthritis while building a new life in Taiwan after growing up in Canada.”: buff.ly/C84MG7k

via realcc & @carriekellenberger.bsky.social
#AxSPA #disability

Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

My #AxSpA Story for @spondylitis

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life ...

Carrie shares her story of life with D2T #axSpA in #Taiwan. She talks about struggles w treatment-resistant symptoms & how these challenges motivated her to create #MySeveralWorlds, a site dedicated to #PatientAdvocacy @arthritischeryl.bsky.social
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...

❓How are #AnkylosingSpondylitis aka #AxialSpondyloarthritis and fibromyalgia rated on the McGill Pain Index? ❗They are consistently rated among 10 of the most painful diseases in the world. "The chronic pain associated with these diseases comes very close to the pain experienced with childbirth. The main thing to remember is that childbirth doesn’t last forever, but you can look forward to a lifetime of unending pain with AS, fibromyalgia and ME." ~ 70 Things About My Invisible Illness You Might Not Know, 2015, Carrie Kellenberger, My Several Worlds (LINK IN COMMENTS) [Image description] An image of vertical line with numbers starting at 0 through 50. 😐 10 and 20 on the McGill Index are: sprain, fracture, and toothache and arthritis having the same pain score. 😧 22-28 include pain such as after shingles pain (22), non terminal cancer (26), chronic back pain (28) and chronic migraine (29) 😭 30 to 38 on the McGill Index are: fibromyalgia (30), Ankylosing Spondylitis (32), childbirth with training (32), childbirth no training (36), and amputation of toe or finger (39). 🤯 CRPS at 46 is the most painful disease in the world. #MySeveralWorlds #SolvePainTogether #LetsTalkAboutPain #ArthritisAwareness #CRPS #APS #ChronicPainAwareness #pwME #PainAwareness

❓How are #AnkylosingSpondylitis aka #AxSpA and fibromyalgia rated on the McGill Pain Index?

❗They are consistently rated among 10 of the most painful diseases in the world.

"The chronic pain associated with these diseases comes very close to the pain experienced with childbirth."

#PainAwareness

2nd BRITSpA Education Course in Axial #Spondyloarthritis
14-May-2026, in Manchester.

Topics include:
~ #axSpA diagnosis and revisions to classification criteria
~ Difficult to manage #axSpA
~ Non-pharmacological management
~ Managing comorbidities

events.in2global.com/event/britsp...

A little primer on arthritis today: From left to right, we see diagrams of three knee joints. The knee on the left is a normal joint. 🦵 Normal Joint It features muscle, tendon, bone, synovial membrane, synovial fluid, joint capsule and cartilage. 🦵 The knee in the middle is a knee with Osteoarthritis. We see thinned cartilage and bone ends rub together. 🦵 The knee on the right is a knee with Rheumatoid Arthritis. This could also be an example of a knee with #AxSpA or #PsoriaticArthritis. In this knee, we can see bone erosion and swollen inflamed synovial membrane. 👉 Disclosure: my knees look like the knee on the right most of the time since 2008. #Spondylitis #MySeveralWorlds Credit Unknown

A little primer on arthritis today:

🦵 Normal Joint

🦵 Osteoarthritis: We see thinned cartilage & bone ends rub together.

🦵 #RA: This could also be a knee with #AxSpA or #PsA. We can see bone erosion and swollen inflamed synovial membrane.

#Spondylitis #MySeveralWorlds
Credit Unknown

Axial spondyloarthritis is evolving—and so is care. New ACR updates show improvements to early diagnosis and more targeted treatments. Read more: zurl.co/aPsht

#AxSpA #Spondyloarthritis #InflammatoryArthritis #AiArthritis #ChronicIllness #InvisibleIllness #AutoimmuneDisease #DiagnosticDelay

Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA

@asintfed.bsky.social
told @gohealio.bsky.social

Who has been to Referral City? Have you spent a lot of time there? I have! 👉 My most recent visit to Referral City resulted in a heart diagnosis after waiting a decade for professionals to decide it was real and not just 'anxiety'. "Just entered Referral City again where I had a severe problem come up with #Chroniclllness that required a referral which led to another referral. Now it's never ending referrals with multiple appts on the same day. I've been down this road before in 2015. It leads nowhere." #AxSpA #HeartProblems

Who has been to Referral City? Have you spent a lot there?

👉 My most recent visit to Referral City resulted in a heart diagnosis after waiting a decade for professionals to decide it was real and not just 'anxiety'.

Credit: Carrie, MySeveralWorlds.com

#ChronicIllness
#AxSpA #HeartProblems

Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

My #AxSpA Story for the SAA

When I was diagnosed with #AxSpA aka #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...

#ArthritisAwareness

Navigating Taiwan's healthcare system: with Carrie Kellenberger - Rti In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie Kellenberger about h...

In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie Kellenberger about her journey of navigating Taiwan's healthcare system as a foreigner in Taiwan living with a chronic autoimmune disease. #axSpA #AutoimmuneArthritis
🔗
www.rti.org.tw/en/programne...

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life ...

Carrie shares her story of life with D2T #axSpA in #Taiwan. She talks about her struggles with treatment-resistant symptoms & how these challenges motivated her to create #MySeveralWorlds dedicated to #PatientAdvocacy. @arthritischeryl.bsky.social
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...

🐎I just learned of this interesting treatment possibility for #axSpA: HIPPOTHERAPY! A simulator mimics movement of a horse. This makes sense bc of the lumbar spine & hip mobility that riding requires. My relative with axSpA said "Should I start horsing around?!" www.tandfonline.com/doi/full/10....

“We never know what someone else is going through just by looking at them. And we certainly have no idea what #patients are going through. ‘Sick’ doesn’t have a look—many of us are stronger than you’ll ever understand.” https://cme.sh/5pK3HT @carriekellenberger #AxSpa #ChronicIllness #ChronicPain

Research Article

Diversity in Axial Spondyloarthritis Drug Trials: Enrollment by Sex, Race, Ethnicity, and Geographic Region

📖 www.jrheum.org/cgi/content/...
@mchoufani.bsky.social @wissamghusn.bsky.social @spondymd.bsky.social

#axSpA #ClinicalTrials #Diversity

Editorial

How Representative Are Data From Clinical Trials in Axial Spondyloarthritis for Women?

📖 doi.org/10.3899/jrhe...

#axSpA #ClinicalTrials #Diversity

HSE approves new treatment for hidradenitis suppurativa and axial spondyloarthritis - PharmaTimes Bimekizumab offers fresh option for patients with chronic conditions

#HSE #HealthServiceExecutive #Ireland #hidradenitissuppurativa #HS #axialspondyloarthritis #axSpA #Bimekizumab #BIMZELEX #NadegeFeeser #Immunology #UCB #chronicdiseases #BrianKirby #Dermatology #HSpatients #phase3studies #clinicaltrial #BEHEARD1 #BEHEARD2 #moderatetosevereHS
zurl.co/NrDNa

Art, Advocacy, and Adaptation: Carrie’s Journey with Difficult to Treat Axial Spondyloarthritis - Arthritis Life Listen Now: Watch Now: Summary: In episode 150 of The Arthritis Life Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” axial spondyloarthritis while building a new life ...

Carrie shares her story of life with D2T #axSpA as an expat in #Taiwan. She opens up about life with treatment-resistant symptoms & talks about how her advocacy meshes with #MySeveralWorlds which was launched in 2007. @arthritischeryl.bsky.social
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...

New ID Numbers for Foreigners: A Bureaucratic Misfire? "This inconvenience is...consequential for Carrie Kellenberger. The former chairwoman of the Canadian Chamber of Commerce in Taiwan requires frequent hospital treatment for #AxSpA." #Taiwan #Disability

topics.amcham.com.tw/2025/11/new-...

Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v

#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social

Carrie Kellenberger - Spondylitis Association of America - Ankylosing Spondylitis I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year, I lost my energy to move and soo...

My #AxSpA Story for the Spondylitis Association of America

When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...