It's #BrainAwarenessWeek 🧠

We have created a simple video to explain what leukodystrophies are and the variety of symptoms they cause.

Please share to spread vital awareness 💙

#AlexTLC #HelpToCope #HelpToHope

We need to fill just 20 entries to reach a £200 prize pot for April! Can you help us?

It's just £1 per month if you purchase an annual entry for £12, or subscribe from just £2 a month for 2 entries.

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashPrize #Win

Sending love to our community this Mother's Day 💙

Our Counsellor, Mel, shared some advice earlier in the week for those who are struggling. You can read it here: https://alextlc.org/news/mothers-day-message/

#AlexTLC #HelpToCope #HelpToHope #MothersDay

There’s just 7 months until our next Community Weekend 💙

Your support is vital to ensure we can continue to host these vital events; please donate if you can:

https://www.justgiving.com/campaign/alextlc-cw

#AlexTLC #HelpToCope #HelpToHope #CommunityWeekend #Donate

As Mother's Day approaches, it can lead to mixed and complicated feelings for many. Our Counsellor, Mel has some comforting advice for those who need it:

https://alextlc.org/news/mothers-day-message/

#AlexTLC #HelpToCope #HelpToHope #MothersDay

Our lucky 50/50 Cash Draw winner for March has won £188.50, with number 302!

Sign up now to be in with a chance of winning in the April draw 💰 🐣

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win

Please join us in wishing Gregor good luck this morning, as he takes on the Kingston Break-fest Run, in memory of Cameron Harrison 💙

https://www.justgiving.com/page/gregor-smith-1

Thank you, Gregor!

#AlexTLC #HelpToCope #HelpToHope #KinstoneBreakFest #Running #Fundraising

February News Round-Up is out today 📩
This month we will be sharing about Rare Disease Day, our counselling service, lighting up our stained glass window and newborn screening updates 💙
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

February is #PayrollGivingMonth!

With Payroll Giving, a £10 donation will only cost you £8 if you're a standard rate taxpayer and only £6 if you're in the 40% band.

https://alextlc.org/news/payroll-giving-month/

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy

We currently have 42 wonderful people who donate monthly. Could you help us hit 100 regular donors? Even a small amount each month really makes a big difference to our work.

Sign up here: https://alextlc.org/help-us-hit-100/

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #HelpUsHit100

It's #TimeToTalkDay

Our Support Services offer various ways to talk about your experience with leukodystrophy, including one to one, online community meetings and counselling.

Find out more: https://alextlc.org/how-we-support-you/

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #TimeToTalk

Our lucky 50/50 Cash Draw winner for February has won £185.50, with number 135!

Sign up now to be in with a chance of winning in the March draw 💰

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win

Do you have experience in Charity Retail or Communications?

We are looking for Trustees to join our dedicated team! This is a voluntary, remote role, 6 hours quarterly.

Find out more: alextlc.org/support-us/volunteer/tru...

#AlexTLC #HelpToCope #HelpToHope #Trustees

Our January News Round-Up is out 📩
We will be sharing about our Community Weekend 2026, the opportunity to abseil down the Falkirk Wheel, Rare Disease Day plans and our Teemill shop
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

Happy #BurnsNight to all our Scottish followers!

Burns Night honours the iconic Scottish poet Robert Burns, who wrote the New Year's Eve anthem Auld Lang Syne. Are you celebrating Burns Night tonight? Let us know in the comments 👇

#AlexTLC #HelpToHope #HelpToCope #Leukodystrophy #BurnsSupper

Our January Research Summary is available🔬📃

To view: alextlc.org/research/research-summar...

Sign up to our mailing list: https://alextlc.org/newsletter-sign-up/

If you have any questions, please contact info@alextlc.org

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

Please join us in saying a big thank you to Clare, Steve and family, who raised an incredible £740 for Alex TLC through Steve's 60th birthday celebrations.

https://www.justgiving.com/page/clare-elphick-3

Thank you all and happy 60th Steve!

#AlexTLC #HelpToCope #HelpToHope #Fundraising

Our lucky 50/50 Cash Draw winner for January has won £183.50, with number 105!

Sign up now to be in with a chance of winning in the February draw 💰

https://alextlc.org/donate/5050-cash-draw/

#AlexTLC #HelpToCope #HelpToHope #CashDraw #CharityDraw #CashPrize #Win

There's only one place left for the Falkirk Wheel Abseil on 22nd March 2026!

Find out more: alextlc.org/fundraising-event/falkir...

#alextlc #helptocope #helptohope #abseil #falkirk #falkirkwheel #hallglen #laurieston #grangemouth #redding #carronshore #larbert

Teemill are offering free UK Shipping this weekend! No code is needed.

https://alex-tlc.teemill.com/

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #LeukodystrophyAwareness #Teemill #CyberWeek

Happy New Year to everyone within our community!

Thank you for being part of our Alex TLC family and for your unwavering support 💙

We look forward to facing 2026 together, and the hope and possibilities it may bring 💫

#AlextlcTLC #HelpToCope #HelpToHope #Leukodystrophy

Today we're saying a big thank you to Bethan, who raised £160 for Alex TLC making and selling Gonks in support of her brother, Sam, who lives with adrenoleukodystrophy (ALD).

Thank you, Bethan!

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy #Fundraising #ThankYou #CareAboutRare

Help us continue to provide critical support services for families like Ruth's. Donate today and join us in helping to cope and helping to hope.

https://visufund.com/light-up-the-sky

#AlexTLC #HelpToCope #HelpToHope #LightUpTheSky #Support

More people than ever need our support. We rely on your donations to be able to provide one-to-one sessions, community meetings, and counselling that helps families cope with leukodystrophy.

https://visufund.com/light-up-the-sky

#AlexTLC #HelpToCope #HelpToHope #LightUpTheSky

We would like to wish everyone a very Merry Christmas! 🎅🎄

We hope your festive period is the best it can possibly be and send love to those who are finding this time difficult 💙

#AlexTLC #HelptToCope #HelpToHope #Leukodystrophy

An important message from our CEO, Sara.

Please share our posts, sign up to #easyfundraising, and donate if you can. Small acts really add up.

https://linktr.ee/Alextlccharity

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy

Our December News Round-Up is out today 📩
We will share about our festive appeal, our Community Weekend 2026, our Support Services Impact Report 2025 and Give Up to Give Back in 2026 💙
Join our mailing list: https://alextlc.org/newsletter-sign-up/
#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

Looking for a last minute Christmas gift? We're taking orders for our 50/50 eGift vouchers until tomorrow, 23rd December 🎁💙

https://alextlc.org/donate/5050-cash-draw/#voucher

#AlexTLC #HelpToCope #HelpToHope #CashDraw #StockingFiller #ChristmasGift

Our December Research Summary is available🔬📃

To view: alextlc.org/research/research-summar...

To sign up to our mailing list: https://alextlc.org/newsletter-sign-up/

If you have any questions, please contact info@alextlc.org

#AlexTLC #Leukodystrophy #HelpToCope #HelpToHope

Today we are remembering Alexander Laurie Hunt, 12th May 1993 – 19th December 2012 💙

We are also sending thoughts and hugs to Alex's Mum, our wonderful CEO Sara, and his brother Ayden 💖

#AlexTLC #HelpToCope #HelpToHope #Leukodystrophy