Today is my coronaversarry. Six years straight of being sick with Covid/long Covid.
Terrible irony to be sick again for it
Just trying to keep breathing
#Covid
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#ME
#CFS
#PASC
#POTS
My coronaversarry is next Friday.
Six years straight of being sick & isolated
I’m lucky to be alive but I also don’t know if I’d call this living: erased from my own life, left to rot
Entombed in my room
While the world looks away
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
I’m finding life quite hard at the moment. Nothing has changed, but I think that’s a big part of the problem.
The whole “no cure, no treatment, no hope” stuff is getting me down.
#LongCovid #LongCovidNZ #NotRecovered
Et si on mettait un peu d'argent dans la recherche de traitements efficaces ??
Rappel:
🅾️🅾️🅾️🅾️🅾️🅾️🅾️🅾️🅾️🅾️🅾️
Traitement #CovidLong approuvé en 🇨🇭!!!
#NotRecovered
#ME #pwME #MECFS #SevereME #VerySevereME #LongCovid #EndMEcfs #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #StillTheSaME #StandByMEcfs #StillSickStillFighting #NotRecovered #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #BerlinBuyers #IACC #MEKills #DontLetMEDie
Image of the globe tilted taken from above the North Pole offset to the right of center in the frame. Globe and background are subtle muted shades of grey representing the muted life of a patient with Myalgic Encephalomyelitis who often can’t tolerate light or color when in more severe states. Title of image reads World ME Day 2025 in black. There’s a circle outline surrounding ME - the logo for the World ME Alliance.
@maxwellfrost.bsky.social @frost.house.gov @sanders.senate.gov @ayannapressley.bsky.social @pressley.house.gov @aoc.bsky.social
As one of the #NotRecovered, I’m sending out a
#DisabilitySOS for the #MillionsMissing who’re #StillSickStillFighting on #WorldMEDay
@meactnet.bsky.social for more info
Screenshot of Estimate for Copay and Total Fees for Vascular Ultrasound and Specialist Physician visit due at Check-in 510 Copay due at Check-in Specialty Care $60 Diagnostic X-Ray $450 Details Estimated Fees $953 within Low $862 to High $967 Total fees $953 Physician fees $953 Insurance covers -$443
Requesting help for immediate medical expenses, including $895 needed ASAP for vascular ultrasound & specialist + transportation + other copays, bills
#HelpFolksLive2025 #HelpSky #SignalBoost #MillionsMissing #DisabilityCrowdfund #MEAwareness #LongCOVIDAwareness #NotRecovered #COVIDisVascular
I am #NotRecovered in over 5 years' time
#LongCovid put me in poverty & erased me from my own life
There is no medical care, no medical access, and no treatments of any sort
Entombed in my room while the world looks away
You are folly to the dangers you ignore. You are not immune to it
I've been ill for 1094 days. How long still?
#notrecovered #niethersteld #longcovid #nationallongcovidawarenessday
I’ve been sick for 1069 days. How much longer?
#NotRecovered #NietHersteld
#5YearsLongCovid
#LongCovidAwarenessDay2025
"We vonden een significante associatie tussen het volume van de hippocampus en ernst van de #MEcvs & #LongCovid symptomen."
"Prof. Corey Smith zei dat hoewel de studie klein is,
het nog maar eens bevestigd dat deze ziektes fysiologisch
zijn en niet psychologisch."
#NotRecovered #MillionsMissing
Five years of #LongCovid
The pandemic isn't over. Those of you who can't imagine the true risks are folly to its dangers. You are risking everything to ignore covid
Long covid will take your health, your wealth, your fam & friends, your job, & all you hold dear
#NotRecovered
#NEISvoid
#disability
#ApresJ20
#LongCovidAwareness
Very concerning as there are 0 approved treatment & millions worldwide are #NotRecovered
😤😤
You’re welcome!
For more info on #MEcfs, I suggest #MEAction which has its own wiki at me-pedia.org.
Another helpful info source is the Bateman-Horne Center batemanhornecenter.org
Hashtags to look for #MillionsMissing
#NotRecovered
#ThereForME
#BerlinBuyers
#JonVsJohnVsME
#MEAwarenessHour
The bad news is that my #PEM #PostExertionalMalaise returned this afternoon. Struggling to walk, for the first time in months.
The good news is that I know what I need to do! And it's Half-Term, so I can easily recover 🙏
#LongCovid #Pacing #NotRecovered!
I'll be hosting this zoom support meeting this Monday 10th Feb for @lcaireland.bsky.social
Those outside Rep of Ireland welcome.
#LongCovid #Ireland #Irish #LongCovidKids #pwLC #NotRecovered
#LongCovid, #ME_CVS , #Lyme, #POTS en #Fibromyalgie patiënten vragen jullie hulp
www.openpetition.eu/be/petition/online/long-...
#NotRecovered
Bitte nicht aufgeben. Ich wünsche dir und allen Betroffenen Durchhaltevermögen, alles Gute und ganz viel Liebe für's neue Jahr. 🍀💚
#LongCovid #Mecfs #NotRecovered #CovidIsNotOver
"In 2022, a Journal of Voice study revealed that 30% of Broadway singers continued to experience vocal fatigue, reduced range, or chronic inflammation after recovering from COVID-19."
#NOTrecovered #longcovid
Long Covid Advocacy Ireland Online Open Session Peer to Peer Support The challenges of being the spouse/partner of a Long Covid patient Who can join? Spouses and partners of Long Covid Patients. Spouses and partners living outside of Ireland are also welcome to attend. Join us! Please note: this event is not open to patients themselves. This decision was taken in order to create a space where partners can open up without inhibition about the challenges they face. Monday December 2nd 7 - 8 PM L.C.A.I. Long Covid Advocacy Ireland Event is free. No booking required. Just click Zoom link provided in post.. Attendance will be capped at 100 guests.Long Covid Advocacy Ireland Online Open Session Peer to Peer Support The challenges of being the spouse/partner of a Long Covid patient Who can join? Spouses and partners of Long Covid Patients. Spouses and partners living outside of Ireland are also welcome to attend. Join us! Please note: this event is not open to patients themselves. This decision was taken in order to create a space where partners can open up without inhibition about the challenges they face. Monday December 2nd 7 - 8 PM L.C.A.I. Long Covid Advocacy Ireland Event is free. No booking required. Just click Zoom link provided in post.. Attendance will be capped at 100 guests.
Tonight! (Mon 2nd Dec at 7pm #Irish time)
Free zoom support meeting for spouses/partners.
Zoom link in comments.
Open to those outside #Ireland
#LongCovid #NotRecovered
Via Long Covid Advocacy Ireland
I do not understand the ongoing lack of protection from Covid in healthcare settings -
Is it hubris? Apathy? Reconciling moral injury? Misinformation? Delusion? Trauma response?
Am at a loss. I don’t know how to make them care anymore
#CovidIsNotOver #Immunocompromised #NotRecovered
German long jumper Malaika Mihambo at #Olympics:
“Mihambo caught #Covid two months ago…Despite recovering from the virus she still felt problems with breathing which continued after the event”
Erm, she’s #NotRecovered then is she!
#LongCovid
www.the-sun.com/sport/121498...
A white screen with black text, saying the following (translated from Dutch): Results Covid Test - You have been tested on March 31st 2022. The result of the test is Positive. This means you have corona.
Today, March 15, is International Long Covid Awareness Day. Close to two years ago, I got sick, and tested positive on a PCR test and just never fully recovered.
#confrontlongcovid #longcovidawarenessday #notrecovered #niethersteld
