Die aktuelle #WiderstandsChronologie-Radiosendung
über
#Akademikerball
#Iran-Proteste
#Männerkundgebung
#FeministischerKampftag
#LongCovidAwareness
#MECFS …
● jetzt gleich (Mo., 16.3.2026, 20:30) auf Radio ORANGE 94.0 – @radioorange940.bsky.social
● online auf nochrichten.net
Best of #mecfs KW12 bislang:
- Bestattungsinstitut freundet dich auf Insta an;
- alte Datinggeschichten fragen wie es geht und ob nicht zufällig deine grosse Altbauwohnung frei wird;
- nette Unterhaltung mit Infusionsplatz nebenan: mit LC verrentet und findet jetzt Gupta supi 😢
Clinical relevance of circulating blood microaggregates and reactivation of Epstein Barr Virus in long-term Post-CoVID syndrome patients — Wick et al
#MECFS
Kennt jemand im Großraum Koblenz Rlp eine Klink die einen Port unter Narkose bei ME/ Post COVID legen würde, ambulant?
Ich hätte einen Arzt der es verordnet.
Gerne RT.
#Medizin #postcovid #MECFS #medizinischeVersorgung
I can’t act. I can think of worlds from simple to profound. But I can’t act on making any of it. So I sit and watch it. And I watch the world pass by without it. And without me. This is the torture of #MECFS. We are HERE and we are ALIVE but we cannot act on LIFE to LIVE.
An embroidery on bone white linen. There are many coral-like neurons in the vague shape of a brain embroidered in shades of blue. The bottom section is navy blue and transitions to a lighter blue at the top. The text at the bottom reads: she was tributaries, all electric.
For #BrainAwarenessWeek I’m sharing my brainiest #SciArt #embroidery pieces. Here’s she was tributaries (2016), a depiction of the electrical storm I feel in my brain when I have cognitive fatigue from #MECFS.
..und wenn ich beim FA Besuch wieder weggeschickt werde,dass ich woanders hin müsse? Wieder 6 Monate warten muss?
Man könnte sagen, dass es darauf auch nicht mehr ankommt nachdem ich die Beschwerden seit ~20Jahren habe
Ich sage,es wird endlich Zeit,dass mir mal tatsächlich geholfen wird
#pots #mecfs
Be patient. Sometimes you have to go through the worst to get to the best. #recovered #anxiety #nevergiveup #eatingdisorder #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia
Manchester Evening News: 'I was in a dark room 24/7 for 18 months': The mystery illness that left a 25-year-old man bedbound
Nick Benton, from Stockport, discusses his ME/CFS & the serious crash that left him bedbound for 18 months.
https://tinyurl.com/7rzdwnkj
#pwME #MECFS #SevereME
In just dieser Klinik hat meine Tochter wegen #MECFS medizinisches Gaslighting erlebt und meine Frau wurde nicht ernstgenenommen. Auch bei Gendermedizin beginnt das Große oft im Kleinen www.saarbruecker-zeitung.de/saarland/hoc...
Eine „unabhängige externe Evaluation des gesamten Bildungsministeriums“ würde wohl jede Menge #Ableismus Diskriminierung u.a. bei #MECFS, mangelnde Selbstkontrolle und eine autoritäre Grundhaltung aufdecken. Ob die Abgeordnete Schmitt-Lang das meint.
www.saarbruecker-zeitung.de/saarland/lan...
ABSTRACT Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disorder with suspected neuroinflammatory pathophysiology. However, previous diffusion tensor imaging (DTI) studies have reported inconsistent white matter abnormali ties in ME/CFS, and specific white matter inflammatory changes remain poorly characterised. This study employed an advanced diffusion- based neuroinflammation imaging (NII) model to investigate white matter neuroinflammation in ME/CFS. Diffusion MRI data from 67 ME/CFS patients (median age, 38; and 54 women) and 67 rigorously matched healthy controls (HCs) (median age 38; and 52 women) were analysed. Seven NII- derived metrics were computed: hindered water ratio (NII- HR), restricted frac tion (NII- RF), fibre fraction (NII- FF), axial diffusivity (NII- AD), radial diffusivity (NII- RD), mean diffusivity (NII- MD) and frac tional anisotropy (NII- FA). Conventional DTI metrics were also calculated. Tract- based spatial statistics were used to perform voxel- wise group comparisons, and multiple regression analysis was conducted to examine the relationship between NII/DTI metrics and clinical measures of mental health, physical health, sleep quality, disability, disease severity and disease duration. Compared to HCs, ME/CFS patients exhibited widespread white matter abnormalities, including significantly lower NII- HR and NII- RF, and significantly higher NII- FF, NII- AD, NII- MD and NII- FA across association, commissural and projection fibres. Additionally, some regions showed decreased NII- AD and NII- MD in ME/CFS. Lower NII- RF, NII- AD and NII- MD in ME/CFS were significantly associated with worse mental health, while lower NII- RF was also associated with a higher level of disability. Among ME/CFS patients, higher NII- FF was associated with lower disease severity. Conventional DTI showed minimal group differences and no significant clinical associations. This study provides in vivo evidence of white …
New from Australia:
Evidence of White Matter Neuroinflammation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Diffusion-Based Neuroinflammation Imaging Study
Free fulltext:
onlinelibrary.wiley.com/doi/full/10....
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
"Chronic fatigue left me bed-bound and questioning my sanity. This therapy was a lifeline" #MECFS #LongCOVID (Telegraph) on SmartNews: l.smartnews.com/p-7lOzxXuo/0... #SmartNews
Dysregulated NK-cell gene expression defines the enduring symptoms of long COVID-19 — Ray et al
"both pro-inflammatory cytokines […] and the anti-inflammatory cytokine IL-10 were reduced in LTCS"
#MECFS
Chronic illness in a time of hate.
#protest #chronicillness #MECFS #activism
open.substack.com/pub/jacksonk...
@eliasulrich
Here the Garmin LongCovid and MEcfs app
https://sites.google.com/view/pacing-with-garmin/
#pacing #longcovid #MEcfs
@longcovid @mecfs
IMAGE DESCRIPTION: Photo of Dr Charles Shepherd. Wording - 'Why are some local ME/CFS services unable to provide a diagnosis of ME/CFS? Please click the link to read the answer in the Medical Matters database.
Medical Matters – ME/CFS Diagnosis
Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.
Q: Why are some local ME/CFS services unable to provide a diagnosis of ME/CFS?
A: https://tinyurl.com/2fdkpua6
#pwME #MECFS #MyalgicE
Danke an MAITHINK und Jens Foell für Aufklärung zu #MECFS. Ist leider gerade bei Mediziner*innen noch dringend nötig.
Gewidmet allen Ärzt:innen und Gutachter:innen und dem PVA GD ganz besonders, die was von psychosomatisch, Dekonditionierung, Schmarotzertum, Simulantinnen und sonst was labern. Sie zeigen nur ihre Ignoranz, Rückschrittlichkeit des eigenen Wissens und der eigenen Vorurteile. #MECFS #Longcovid
About the #PACE trial:
"It may be that the best thing to emerge from the PACE trial will be an impetus to improve the way in which trials are funded, conducted, overseen and reported – with data being made available for reanalysis in future."
#MECFS
pubmed.ncbi.nlm.nih.gov/28805517/
➡️ Adverse Events/Potential Harms
➡️ Unterscheidung von Schweregraden in Diskussion
#Physiotherapy #MECFS
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Sehr interessantes und differenziertes Review bezüglich #Physiotherapy & #MECFS:
➡️ Unterscheidung zwischen CF (Chronic Fatigue), CFS und ME
➡️ PEM (PENE) zentral
➡️ Evaluationskriterien und was das für die Praxis bedeutet (bedeuten kann)
pubmed.ncbi.nlm.nih.gov/33397399/
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Man stelle sich vor
Monika Gruber zahlt exorbitante Kassenbeiträge für massive Fehldiagnostik, zudem auch Pflegegeld und Rente für immer mehr an #mecfs erkrankte Menschen. Kriegt aber auch erst in 6 Monaten einen dringend benötigten Facharzt. Danke! 😘
IMAGE DESCRIPTION: 1 in 6 people live with a neurological condition. Neurological Alliance of Scotland/ Northern Ireland Neurological Charities Alliance/ the Welsh Neurological Alliance and The ME Association logos
1/3: It's #BrainAwarenessWeek.
At least 1 in 6 people live with a neurological condition - this includes children and young people. Millions of people have loved ones who are affected by these complex and often life-changing conditions.
#MECFS #MyalgicEncephalomyelitis #BAW2026 #DontAssumeImOk
"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully […]
