I'm getting good results from my Garmin 's "Body Battery" feature. Meaning that it consistently identifies PEM and predicts bad days. It's kind of the permission I need not to do more than I should, because I can watch the harm in real time and hopefully prevent the worst

#ME #PwME #LongCovid #POTS

Spring can be extra challenging for masties. Chinese medicine can help.

buff.ly/cxiajEs

#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness

Lean In! #chronicpain #anxiety #pain #panicattack #spoonie #fibromyalgia #chronicfatigue #painrelief #chronicpainwarrior #spoonielife #mindbody #mentalhealth #ibs #migraines #healing #neuroplastic #painmanagement #recovery #disability #crps #health #depression #backpain #dysautonomia #eds #pots

Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS) Have you ever thought about the difference between mindful eating and intuitive eating?  They are not the same thing, but both can be helpful approaches to nutrition when a person lives with E…

Intuitive or mindful...which one resonates more for you?

#BlogPost #GutHealth #Nutrition #Diet #IntuitiveEating #Mindful #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare 💕 #Wellness

..und wenn ich beim FA Besuch wieder weggeschickt werde,dass ich woanders hin müsse? Wieder 6 Monate warten muss?
Man könnte sagen, dass es darauf auch nicht mehr ankommt nachdem ich die Beschwerden seit ~20Jahren habe
Ich sage,es wird endlich Zeit,dass mir mal tatsächlich geholfen wird
#pots #mecfs

A Wellness Guide for Gastroparesis: Essential Resources, Information, and Coping Strategies Resources for those coping with gastroparesis. Diet tips, wellness strategies, support groups, and other resources for the gastroparesis community.

Some strategies for dealing with gastroparesis.

#GutHealth #Gastroparesis #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Seasonal living has extra resonance for those of us with MCAS.

#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully […]

die Pedale, bis sie Herzrasen bekam, weinte und nicht mehr treten konnte. Aber der Befund lügt nie. Es ist bekannt, dass das Kind #Asthma, #Hashimoto und aktuell enorm Herzrasen & -stolpern mit und ohne Belastung hat,plus Schwindel, Kopfweh... #POTS wurde nicht getestet und der #Vagusnerv
5/7

I had such a good weekend, but I am so fucked 😅🙃
4 flights in 3 days. Slept at in-laws house. Ran for a flight to not miss it, carried a 7 month old baby (niece) around, walked Sacremento with fam, and then home in time for a concert. That didnt have chairs. So grateful I have 2 days off. #pots

Things are going to get pretty tough. Any support whatsoever, a one off tip, or even a share of this post, is much appreciated. 🙏🫶🏼 #Kikorangi #AoNZ #nzpol
#EhlersDanlosSyndrome #POTS

MCAS and spring go together like peas & carrots...if their goal was to choose violence.
Chinese medicine can change that, though.

buff.ly/cxiajEs

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

I got the Visible tool and app. Here's to figuring out pacing to prevent overdoing it going forward!
#POTS
#ChronicIllness
#NEISVoid

a black and white drawing of a cartoon character with a heart on its chest . ALT: a black and white drawing of a cartoon character with a heart on its chest .

No stream today. I'm in a #POTS flare but hopefully I'll see y'all tomorrow 💜 possibly more indie horror!

Also, if you're a #chronicallyill person looking for more #disabled creators to watch, hi!!! My name is Gem & I stream on #Twitch a few times a week! Stop by sometime! 🥰
✨️ Twitch.tv/MagickGem ✨️

Sleep as Trail Provisions What Gets You Through the Night When the Body Won’t Cooperate

Sleep "hygiene" doesn't mean much when your nervous system is wired from trauma, chronic pain, and autoimmunity. I tried to outrun it with supplements + kale. That's not where it gets fixed. New Trail Provisions post: buff.ly/myVOfZ3

#sleep #chronicillness #autoimmunity #POTS #lupus #CPTSD

There’s an idea when you’re healthy that if you get a serious illness people will rally around you, donate to medical research, educate themselves, that surely if they love you that is how they will respond.
It is not. And so we do it for ourselves. #LongCovid #LongCovidAwarenessDay #MECFS #POTS

Research suggests that around 7% of people with Long Covid may meet diagnostic criteria for PoTS. Many more experience broader autonomic symptoms and abnormalities beyond PoTS.

❤️‍🩹 To find out more watch this short 4-min video: www.youtube.com/watch?v=XoKm...

#LongCovidAwareness #PoTS

3/3

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Oh, MCAS...

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Spring can be tough for people with MCAS.

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

It's 5PM and my body almost works now.

#mecfs #myalgicencephalomyelitis #POTS

Doctor Raises Awareness for Hypermobility Spectrum Disorder - Stanford Medicine Children’s Health Blog Mekhla Varma, MD, discusses Hypermobility Spectrum Disorder (HSD), a little-known condition affecting connective tissue throughout the body.

Representation is important and so is awareness.

#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

This one goes pretty hard

#Saturday #dance #party #EDM #heavy #thrash #dreamcore #groovecore #phonk #plugg #dril #trap #PsyPhonk #phonk

#focus #ADHD #ASD #AuDHD #ASMR #frisson #NeuroDNB #POTS #joy #love #SoundHealing #meditation #VagalShift #CNSregulation #long #LongCovid #covid #Covid19 #werk

Chronic Illness and Friendship Chronic illness can create barriers to making and keeping friends. Learn why this is so and ways to challenge these barriers.

Chronic illness can make a lot of things more challenging, including friendship.

#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

One step forward with a heard heavy as ice cold stone.
Living with invisible disabilities can be gruesome at times and downright scary at others.

#mentalhealth #audhdartist #pots #art #mentalhealthart #audhd #depression #anxiety