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Posts tagged #PoTS on Bluesky
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A Wellness Guide for Gastroparesis: Essential Resources, Information, and Coping Strategies Resources for those coping with gastroparesis. Diet tips, wellness strategies, support groups, and other resources for the gastroparesis community.

Some strategies for dealing with gastroparesis.

#GutHealth #Gastroparesis #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Seasonal living has extra resonance for those of us with MCAS.

#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness

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Original post on hachyderm.io

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully […]

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die Pedale, bis sie Herzrasen bekam, weinte und nicht mehr treten konnte. Aber der Befund lügt nie. Es ist bekannt, dass das Kind #Asthma, #Hashimoto und aktuell enorm Herzrasen & -stolpern mit und ohne Belastung hat,plus Schwindel, Kopfweh... #POTS wurde nicht getestet und der #Vagusnerv
5/7

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I had such a good weekend, but I am so fucked 😅🙃
4 flights in 3 days. Slept at in-laws house. Ran for a flight to not miss it, carried a 7 month old baby (niece) around, walked Sacremento with fam, and then home in time for a concert. That didnt have chairs. So grateful I have 2 days off. #pots

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Things are going to get pretty tough. Any support whatsoever, a one off tip, or even a share of this post, is much appreciated. 🙏🫶🏼 #Kikorangi #AoNZ #nzpol
#EhlersDanlosSyndrome #POTS

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MCAS and spring go together like peas & carrots...if their goal was to choose violence.
Chinese medicine can change that, though.

buff.ly/cxiajEs

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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I got the Visible tool and app. Here's to figuring out pacing to prevent overdoing it going forward!
#POTS
#ChronicIllness
#NEISVoid

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a black and white drawing of a cartoon character with a heart on its chest . ALT: a black and white drawing of a cartoon character with a heart on its chest .

No stream today. I'm in a #POTS flare but hopefully I'll see y'all tomorrow 💜 possibly more indie horror!

Also, if you're a #chronicallyill person looking for more #disabled creators to watch, hi!!! My name is Gem & I stream on #Twitch a few times a week! Stop by sometime! 🥰
✨️ Twitch.tv/MagickGem ✨️

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Sleep as Trail Provisions What Gets You Through the Night When the Body Won’t Cooperate

Sleep "hygiene" doesn't mean much when your nervous system is wired from trauma, chronic pain, and autoimmunity. I tried to outrun it with supplements + kale. That's not where it gets fixed. New Trail Provisions post: buff.ly/myVOfZ3

#sleep #chronicillness #autoimmunity #POTS #lupus #CPTSD

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There’s an idea when you’re healthy that if you get a serious illness people will rally around you, donate to medical research, educate themselves, that surely if they love you that is how they will respond.
It is not. And so we do it for ourselves. #LongCovid #LongCovidAwarenessDay #MECFS #POTS

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Research suggests that around 7% of people with Long Covid may meet diagnostic criteria for PoTS. Many more experience broader autonomic symptoms and abnormalities beyond PoTS.

❤️‍🩹 To find out more watch this short 4-min video: www.youtube.com/watch?v=XoKm...

#LongCovidAwareness #PoTS

3/3

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Oh, MCAS...

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Spring can be tough for people with MCAS.

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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It's 5PM and my body almost works now.

#mecfs #myalgicencephalomyelitis #POTS

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Doctor Raises Awareness for Hypermobility Spectrum Disorder - Stanford Medicine Children’s Health Blog Mekhla Varma, MD, discusses Hypermobility Spectrum Disorder (HSD), a little-known condition affecting connective tissue throughout the body.

Representation is important and so is awareness.

#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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This one goes pretty hard

#Saturday #dance #party #EDM #heavy #thrash #dreamcore #groovecore #phonk #plugg #dril #trap #PsyPhonk #phonk

#focus #ADHD #ASD #AuDHD #ASMR #frisson #NeuroDNB #POTS #joy #love #SoundHealing #meditation #VagalShift #CNSregulation #long #LongCovid #covid #Covid19 #werk

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Chronic Illness and Friendship Chronic illness can create barriers to making and keeping friends. Learn why this is so and ways to challenge these barriers.

Chronic illness can make a lot of things more challenging, including friendship.

#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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One step forward with a heard heavy as ice cold stone.
Living with invisible disabilities can be gruesome at times and downright scary at others.

#mentalhealth #audhdartist #pots #art #mentalhealthart #audhd #depression #anxiety

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“Ehlers-Danlos Syndrome, Tui Na, and You” Revisited (Some Thoughts on the OG Blog Post) It seems unbelievable when I look at it, but the first blog post I wrote about tui na and EDS went live in September of 2017. …

My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Are you taking extra good care of yourself during the spring season?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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Picture of the infamous RuPaul's Drag Race Drop meme captioned "Never have I ever had a syncopal episode and wound up like this on his thang"

Picture of the infamous RuPaul's Drag Race Drop meme captioned "Never have I ever had a syncopal episode and wound up like this on his thang"

When I had a Facebook account I was almost perm'd from one of the #POTS groups over my OC. Now I don't know if this has happened to everyone or if I'm an anomaly 😩😭

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