Some strategies for dealing with gastroparesis.
#GutHealth #Gastroparesis #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness
Seasonal living has extra resonance for those of us with MCAS.
#NewBlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness
"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully […]
die Pedale, bis sie Herzrasen bekam, weinte und nicht mehr treten konnte. Aber der Befund lügt nie. Es ist bekannt, dass das Kind #Asthma, #Hashimoto und aktuell enorm Herzrasen & -stolpern mit und ohne Belastung hat,plus Schwindel, Kopfweh... #POTS wurde nicht getestet und der #Vagusnerv
5/7
I had such a good weekend, but I am so fucked 😅🙃
4 flights in 3 days. Slept at in-laws house. Ran for a flight to not miss it, carried a 7 month old baby (niece) around, walked Sacremento with fam, and then home in time for a concert. That didnt have chairs. So grateful I have 2 days off. #pots
Things are going to get pretty tough. Any support whatsoever, a one off tip, or even a share of this post, is much appreciated. 🙏🫶🏼 #Kikorangi #AoNZ #nzpol
#EhlersDanlosSyndrome #POTS
MCAS and spring go together like peas & carrots...if their goal was to choose violence.
Chinese medicine can change that, though.
buff.ly/cxiajEs
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
I got the Visible tool and app. Here's to figuring out pacing to prevent overdoing it going forward!
#POTS
#ChronicIllness
#NEISVoid
No stream today. I'm in a #POTS flare but hopefully I'll see y'all tomorrow 💜 possibly more indie horror!
Also, if you're a #chronicallyill person looking for more #disabled creators to watch, hi!!! My name is Gem & I stream on #Twitch a few times a week! Stop by sometime! 🥰
✨️ Twitch.tv/MagickGem ✨️
Sleep "hygiene" doesn't mean much when your nervous system is wired from trauma, chronic pain, and autoimmunity. I tried to outrun it with supplements + kale. That's not where it gets fixed. New Trail Provisions post: buff.ly/myVOfZ3
#sleep #chronicillness #autoimmunity #POTS #lupus #CPTSD
There’s an idea when you’re healthy that if you get a serious illness people will rally around you, donate to medical research, educate themselves, that surely if they love you that is how they will respond.
It is not. And so we do it for ourselves. #LongCovid #LongCovidAwarenessDay #MECFS #POTS
Research suggests that around 7% of people with Long Covid may meet diagnostic criteria for PoTS. Many more experience broader autonomic symptoms and abnormalities beyond PoTS.
❤️🩹 To find out more watch this short 4-min video: www.youtube.com/watch?v=XoKm...
#LongCovidAwareness #PoTS
3/3
Oh, MCAS...
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
Spring can be tough for people with MCAS.
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
It's 5PM and my body almost works now.
#mecfs #myalgicencephalomyelitis #POTS
Representation is important and so is awareness.
#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
This one goes pretty hard
#Saturday #dance #party #EDM #heavy #thrash #dreamcore #groovecore #phonk #plugg #dril #trap #PsyPhonk #phonk
#focus #ADHD #ASD #AuDHD #ASMR #frisson #NeuroDNB #POTS #joy #love #SoundHealing #meditation #VagalShift #CNSregulation #long #LongCovid #covid #Covid19 #werk
Chronic illness can make a lot of things more challenging, including friendship.
#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness
One step forward with a heard heavy as ice cold stone.
Living with invisible disabilities can be gruesome at times and downright scary at others.
#mentalhealth #audhdartist #pots #art #mentalhealthart #audhd #depression #anxiety
My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness
Are you taking extra good care of yourself during the spring season?
#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness
Picture of the infamous RuPaul's Drag Race Drop meme captioned "Never have I ever had a syncopal episode and wound up like this on his thang"
When I had a Facebook account I was almost perm'd from one of the #POTS groups over my OC. Now I don't know if this has happened to everyone or if I'm an anomaly 😩😭