Finally; the work would not have been without the backing and support from @solveme.bsky.social. We were funded for it through a #SolveME #Ramsay Research Grant. solvecfs.org
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#SolveMe
Posts tagged #SolveMe on Bluesky
Q&A series on ME/CFS featuring Dr. Roshan Kumar discussing breakthroughs and hope in research and treatment.
What’s New in ME/CFS?
We sat down with Dr. Roshan Kumar of @HiFiBio to talk about breakthroughs in immune profiling, treatment hope, and what’s next.
🎥 Watch now → youtu.be/20FcPa2L8M0
#MECFS #LongCOVID #SolveME #HopeInScience #MEAwarenessHour
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Q&A series on ME/CFS featuring Francisco Westermeier, PhD, discussing breakthroughs and hope in ME/CFS, Long Covid, and related illnesses.
“Distinct datasets are now converging on similar disease signatures.” — Dr. Francisco Westermeier in the new "What’s New in ME/CFS?" Q&A . 📖 Read now → ow.ly/3lnc50XQck4
#MECFS #SolveME #LongCOVID #ResearchBreakthrough #HopeInScience
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"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.
We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
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Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw
#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
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MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...
#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
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Skrá hlaupara:
www.rmi.is/hlaupastyrku...
#reykjavikurmarathon #LongCovidVitundarvakning #MEvitundarvakning #reykjavikmarathon #MEer #LCer #meawareness #millionsmissing #EkkiGefastUpp #myalgicencephalomyelitis #SolveMe #MyalgicEncephalomyelitis #lífiðmeðme #hlaupastyrkur
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www.tiktok.com/t/ZTj3BTgHx/ @solveme.bsky.social #solveme #solvemecfs #solvecfs #mecfs #mecfsawareness #longcovid #longcovidawareness
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solvecfs.quorum.us/campaign/128...
#mecfs #solveme #mecfsawareness #longcovid #longcovidawareness
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"Echoes of the Undone" is built from real stories of disabled & chronically ill people.
Starting bid: $75 | Buy now: $150
All proceeds to Solve ME.
Bid via @CorpielFamilyShoppe on IG/FB.
#DisabilityArt #SolveME #ChronicIllness #SpoonieVoices
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What we do wish is for you to help us spread Long Covid awareness and advocate for more resources, research, and support for people with Long Covid and other complex chronic illnesses like #MECFS. 8/
#SolveME #SolveLongCovid
solvecfs.org/the-solve-lo...
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March is #LongCovidAwarenessMonth and so many of us are hitting our 5-year anniversaries of #LongCovid hell. #CovidIsNotOver #TreatLongCovid #SolveME #MillonsMissing
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Yes. So much this. It’s maddening. I was moderate the 1st year of my illness (nearly bedbound for 1st few mos). Depleted self further seeking med care to no good end. Finding ME disability community = my lifeline. “Mild” since 2021. #SolveME #MillionsMissing #GreatestMEdicalScandal #MECFS #LongCovid
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Upcoming talk from #SolveME - Prof Rob Wüst discusses Skeletal Muscle Fatigue and PEM
"at the physiological and molecular levels, PEM differs from general fatigue. These differences have big implications for how physical exercise affects patients with Long Covid or ME/CFS."
Oct 3, 9am PT (5pm UK)
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Screenshot of the Solve ME announcement: "We’re excited to share the newest edition of our flagship research and advocacy journal, The Chronicle. Inside you’ll find: - Our Visit to Yale to Honor Immunologist Dr. Akiko Iwasaki - Solve’s 2024 Appropriations Asks - Highlights from Advocacy Week - Updates on Solve-Funded Research - Our Key Takeaways From the NIH Intramural ME/CFS Clinical Study - Solve Together Enrollment for Pioneering Clinical Studies - How to Make a Difference with DIY Fundraising - Study Using Solve Real-World Data Examines Joint Hypermobility - Reflections from Solve President & CEO Emily Taylor"
Solve ME has published the summer 2024 Edition of The Chronicle
solvecfs.org/read-the-sum...
#MEcfs #LongCovid #SolveME
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Quotation from the Patient-Led Research Collaborative petition: “Failure to address this problem will result in significant economic, health, quality of life, and societal costs, in the trillions of dollars. Moreover, every dollar invested in Long COVID and IACC research will prepare our country for future pandemics and emerging infection-associated conditions.”
Please sign & share this Patient-Led Research Collaborative petition to call on the Biden administration to add funding for #LongCovid, #MECFS & other infection-associated chronic conditions in the FY25 budget.
#TreatLongCovid #SolveME #CovidIsNotOver
patientresearchcovid19.com/advocacy/let...
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Special thanks to Rep. @NitaLowey for being such a strong supporter of #MECFS. We felt heard and hopeful after our call yesterday. #CongressFight4ME @PlzsolveCFS #SolveME https://www.youtube.com/watch?v=m5ZdrZbvR4o
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