Daily Spoon Count 5/10
Pain Level 2/10
Been an exhausted pidgeon the last few days. Like just dragged out. Winter is getting to me, didn't adapt to the time change. Just discombobulated. Hopefully you're all having a better go. Be a work in progress today and everyday #ibd #spoonie #chronicillness
Remission = confetti but symptoms still crash the party. Fatigue & pain aren’t just bad luck, they're common experiences. You're not alone! Read more and let's chat! #Crohns #IBD https://crhns.uk/crohnssymptomsinremission1773642628
Daily Spoon Count 7/10
Pain Level 2/10
No spoon count y'day, app wouldn't load. Had a great coffee date with @runningbackwards.bsky.social and our friend Nancy. Much needed laughs and chat, the less news I see, better my mental health. Be a work in progress today and everyday. #ibd #spoonie
Efficacy and safety of the interleukin-10–fragment F8 fusion protein PF-06687234 as add-on therapy to infliximab in patients with active ulcerative colitis: a randomized, phase IIa clinical trial
@tagastroenterol.bsky.social
@journals.sagepub.com
journals.sagepub.com/doi/10.1177/...
#IBD #research
Final results from the vedolizumab extended access program multinational study demonstrate long-term treatment persistence and safety
@tagastroenterol.bsky.social
@journals.sagepub.com
journals.sagepub.com/doi/10.1177/...
#biologics #IBD #Chrohns #colitis #gastroenterology #medicine #openaccess
It’s #WorldSleepDay, but #IBD and sleep aren't always on speaking terms. 😴 Between nighttime urgency and #IBDFatigue, getting rest is a battle. How do you manage your #SleepHygiene when your #Crohns or #Colitis has other plans?
The nurse knew nothing about the #PathToRemission adopted in England, but supported me all the way, anyway.
SNHS staff take time to ensure care is provided. This never occurred in England. Even my #IBD care is consistent and miles above the care I received in #Kent
A good start to the day: 7+ hrs of sleep. No pain, just a 'shadow' of where it was. No 'urgency'. Had some ginger oat biscuits, which I hope won't kick things off. Not great as a #diabetic but managing #Crohn's is a priority just now.
#ChronicIllness #IBD #CrohnsColitis #Insomnnia
Black and Latino individuals with #IBD may be more than twice as likely to have post-traumatic stress than their White counterparts.
Read More: https://bit.ly/4bF9Pix
Propel a Cure has announced a new grant opportunity to support impactful Crohn’s disease research! Learn more about this important funding opportunity and how to apply by visiting their website: www.propelacure.org/grants
#crohns #ibd #inflammatoryboweldisease
Private-practice data show chromoendoscopy improves #IBD surveillance. In patients with invisible dysplasia, CE found many lesions missed by HD white light and enabled long-term monitoring, helping over half avoid surgical intervention.
🔗 https://ow.ly/W31r50Yrskq
Managed to get some sleep between 04:30 and 08:30. Tired, but pain free. Toilet trips are ongoing, sadly.
#IBD #CrohnsColitis #Crohns
Daily Spoon Count 7/10
Pain Level 2/10
Baseline day. Read an another article about a woman who was medically gaslighted. She lived. Many don't. It's triggering b/c it killed my wife. Our medical system is fucked. Be a work in progress today #ibd #spoonie #widowed #grief
www.cbc.ca/news/canada/...
The April 2026 issue of @lancetgastrohep.bsky.social is out today at www.thelancet.com/gastrohep
This month's issue features content on #IBD, #cirrhosis, #pancreaticcancer, #viralhepatitis, #MASLD + more...
#GastroSky #MedSky #LiverSky
01.30 Yep. I woke to rush to the bathroom again. It's been an hour, and I can feel there is more to come, so no point trying to sleep just yet.
The joys of #Crohns
#IBD #CrohnsColitis
It's going on for 16:00, and I haven't eaten yet today. I just cannot risk it. Just sipping water slowly.
I still require painkillers. Losing blood now, too.
#IBD #CrohnsColitis #Crohns #Slainte #Goirteas
It is not a cold day today, just particularly windy. That said, I put the heating on because I am really unwell and feeling every bit of it. The tiredness is probably adding to it.
#IBD #CrohnsColitis #Crohns #Slàinte
Been awake since 02.30: pain, sweats, nausea, back & forth to the toilet. Could not get rest at all. As soon as I lay down, I had to get back up again.
Have no idea of the cause.
#IBD #Crohns #CrohnsColitis
Daily Spoon Count 6/10
Pain Level 2/10
It's Wednesday and I'm still having my ass kicked by the time change. I get to take @runningbackwards.bsky.social to a diagnostic at the hospital today. Hopefully do more writing today. Be a work in progress today and everyday #ibd #spoonie #chronicillness
#Inflammation rewires the enteric nervous system through neurogenic #monocyte recruitment, say Sravya Kurapati, Changsik Shin, Krisztina Szabo, Milena Bogunovic @umasschan.bsky.social and colleagues: rupress.org/jem/article/...
#MucosalImmunology #Neuroinflammation #IBD
Should we use AI to manage #IBD? The answer: Maybe. For #AboutIBDPodcast, I asked my husband, Mike, to explain how AI works, how to use it responsibly, and where it may not be ready for prime time. Get Episode 196 in your podcast app, on YouTube, or on my website: bit.ly/AIBD196
📢 Call for #IBD survey participants 📢
Proud to partner with Dr. Manasi Agrawal at Mount Sinai to explore patient perspectives on environmental factors in IBD 🌎
Access the survey via the QR code or the link: redcap.mountsinai.org/redcap/surve...
Your input will help direct future IBD research! 🔬
Daily Spoon Count 6/10
Pain Level 2/10
Time change is still working me over. Had a nice walk in Irishtown park w @runningbackwards.bsky.social bit icy but not too bad. Got that email re: my side hustle, good news, stress lowered. Be a work in progress today and everyday #ibd #spoonie #widowed
I need help fighting ulcerative colitis. Please share, support, or donate—every small action counts. Thank you and God bless. gofund.me/0ff01c8b7 #autoimmunedisease #ulcerativecolitis #iritableboweldisease #IBD
🚨 Save the Date! The 2026 #IBD #Pharmacist Virtual Symposium is coming up on May 30. Explore cutting-edge IBD care across the lifespan — from #pediatric updates to #pregnancy, #geriatric care, and more.
Secure your spot: https://bit.ly/4kYXE2C #clinicalpharmacy #GIpharmacy
Daily Spoon Count 5/10
Pain Level 2/10
I hate the time change. It messes with my circadian rhythm. I lose sleep, have no idea what time it is, and I'm time obsessed. I might be adjusted by Friday... Maybe. Be a work in progress today and everyday #ibd #spoonie #chronicillness #tism
On this #InternationalWomensDay we celebrate the women of the #IBD community
👊🏼Patients living the reality of IBD
👊🏽Clinicians & researchers working to improve care
👊🏾Advocates & caregivers strengthening this community
Each plays a role in the future of IBD care
#IWD2026
Daily Spoon Count 7/10
Pain Level 2/10
Well I made it through that mild flare and knocked it down. Pretty sure it was a good reaction. Still taking a lot of media down time. It's good for my mood and sanity. Be a work in progress today and everyday #ibd #spoonie #chronicillness #mentalhealth
@biorxivpreprint.bsky.social GMCSF shapes immune niches in Crohn’s disease, restrainingILC1 while sustaining ILC3 and boosts IL-22 to limits ulceration #IBD biorxiv.org/content/10.6...
