We represent more than 24,000 paediatricians in the UK and internationally, working to ensure that children everywhere receive the best care.
Visit our website: www.rcpch.ac.uk
ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Hi, Iโm Stacey, the author of the Fox Under The Moon book series. My books focus on the emotional challenges of the human experience; love, grief, loss friendship, health and more. Conversations between Fox, Moon and Friends help find the right answer.
Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
Informed decisions & verifiable facts please, not opinion & belief. UK. ๐ฌ๐ง
Mine of occasionally useful information.
NHS and healthcare ๐
#Equality #Justbe #Inclusion
#LGBTQ+ ๐ ally
#pwME
#MECFS
#Activetravel ๐ฒ
#Sustainability
#Gardening
#VisibleApp
GP, NHS Cheshire and Merseyside, RCGP Mersey Faculty
Calling for an NHS thatโs there for Long COVID and ME
Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
knitty.com : the free online knitting + fibercraft mag, est. 2002. Amy, editor (she): est. quite a bit before that. ๐งถ
Free thanks to our Patrons!
guild.knitty.com
#knitting #crochet #AuDHD #science #compassion #CDN #hamont ๐จ๐ฆ
Perpetually covid vaxxed๐
Lifelong Dem. Teacher. Chemistry ๐ฅฝ ๐งช. Sesame Street adult. Fuck whatever this shit is, look at what youโve done.
Advocate for Safe Schools with a focus on prevention like Clean Air to protect children from health risks like long Covid. Sharing data on child Covid hospitalizations, long Covid, and schools with clean air: scholenveilig.com
๐The Netherlands
Quiet life in coastal Aotearoa New Zealand. Equity, empathy and compassion. Pro-cat. #pwME
We love Starling Murmurations and we log roost locations across the UK throughout the Autumn/Winter. We also have a large FB Group and online Forum,
๐ M.E.Carer of son aged 32, ME for 13yrs ๐.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate ๐จ๐ฎ
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch
Max | they/them | Ball of pissed off mast cells | trying to survive a collapse is stressful | autistic and disabled | Iโm just here for the ride โฟ๏ธ๐ณ๏ธโ๐
Family member. Teacher. #COVIDIsNotOver
Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info
Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social
Join a growing movement calling for a decent life for Disabled people: https://buff.ly/IZDn3T5
Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
LongCovid & ME/CFS conference project. Weโre a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.โจ
Boonwurrung country, Australia
Caring for the York ME Community & Accessibility in York UK. Could talk football all day long.
Like to Word Doodle (some call it poetry) The Word Doodle Trilogy is out on Amazon now !
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
Vegan mama of two utterly brilliant autistic people ~ Former home educator still supporting the UK home ed community via our group PopArt Home Education ~ Van Dweller for the last decade ~ Interested in Nature, Art, History and saving our planet! ๐
COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway
ME/POTS since childhood, living the housebound, horizontal life.
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Carer for my daughter with very severe ME | ME-Myalgic Encephalomyelitis |
ME since 1991.Owned by Shih Tzu called Teddy ๐พ Interested in ME advocacy & research.Dogs inc.welfare eg #LucysLaw .Wildlife. Books. Bit of Politics. #pwME Twitter Handle @_joannesmith
Elder statesman of the Peter Pan Club. ๐
#mecfs #fibromyalgia #SFN
Bullshit Artist formerly known as Max Bond, Murray Huana, Elrond Hubbard, Arsen Balls and Anita Schitt.
Living on unceded Kokatha land.
Sometimes I lie for comedic effect.
Betsy was rescued from a cruel laboratory dog breeder. She now helps cross-party MPs end the failed practice of animal experiments, as Beagle Ambassador for the science-based campaign For Life On Earth (FLOE)
https://www.betsybeagle.org
๐ฌ๐งHolistic, inclusive, trauma-informed, neurodivergent experience and inequalities aware, paediatric Nurse, Health Visitor &researcher (with lived experience of ADHD, hEDS,CRPS & SEND parenting).
Think KPI (not โ
box)- Keeping People Included!
Views my own.
Mom, wife, web developer, artist. Chronically ill with #LongCovid / #POTS / #MECFS . I make custom armbands for the Visible app which is a lifesaver for me.
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
She/They. PhD in Critical Disability Studies. Really, really big into indoor air quality and PPE. #CovidIsNotOver and pandemic protections are an access issue. Trans rights!
Twitter: @elisabethalicee
Mastodon: @elisabethalicee@zeroes.ca
ME Sufferer. Mild from Glandular Fever 1986, Severe from Flu 2000. Chronic Lyme too. Currently Borrelia free. 6 DecodeME genes mutated, 5of6 SNP'S too. Biggest threat is Persistent Infections. Alternative medicine detects my infections, the NHS does not!
Horizontal advocate for #pwME. ๐ณ๐ฑ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ. Medically Retired Hardware Engineer. FOSS Fan.
Ally. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
M.E(Over25Years so far๐ฆโ๐ฅ๐ชซ๐)๐ฅDepression,Millennial,Vegan๐ฑSloth๐ฆฅMagpieโจLove:Animals๐พ๐,Piercings,Tattoos,Soaps,๐ธ,Crystals๐LipBalm๐J2๐ค1R๐ตTT๐ต+Coffeeโ๏ธ+More๐ซถShe/Herโ๏ธ
โฑ ๐๐ ๐/๐ ๐๐๐๐ ๐จ๐๐๐๐๐๐
โฑ ๐๐๐๐๐๐๐๐๐๐ ๐๐๐
๐๐๐๐๐๐๐๐ ๐๐๐ ๐งธ
โฑ ๐๐๐๐๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐๐๐
๐๐ ๐ท๐๐๐๐๐๐๐๐๐, ๐ด๐๐
๐๐๐๐๐ & ๐ช๐๐๐๐๐๐๐๐๐๐ ๐ชด
โแดแด/แด๊ฐ๊ฑ แดแดษด แดแดแดแด แดแด แดสสแดสษชษดษข แดสแดแด ษช๊ฑ แด
แดแดส แดแด สแดแด. แดแด แดสสแดสษชษดษขโ
Biomedical Scientist before virus in 97โ triggered ME; a body that no longer worked, lost job I loved. Supporting campaigning for change, for proper diagnosis & management #ME/CFS https://youtu.be/RiwX9Y0NbiQ
I like trees.
I live on Ngunnawal land.
DM without invitation is discouraged.
South West UK, #autistic, #close2ME, learning as fast as I can! Caring for #pwme
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
โถ๐, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Studying African rainforest wasps, biodiversity, and other excuses not to get a real job. University of Turku, but living in Kรฅllby ๐ซ๐ฎ.
Posts in English / svenska / suomeksi
Also here:
https://mastodon.online/@tapani_hopkins
https://users.utu.fi/taesho
Look deeply and patiently into nature, and everything will become clearer.
Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Weโre a plural system, and we love to knit cute little #amigurumi animals!
[HIATUS] Shop: https://artisans.coop/pages/seller-profile/rainbow-ravels
[HIATUS] Shop 2: https://rainbowravels.mayhem.my/
They/them! We try to only share images with alt text.
The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com
๐บ๐ธ Guardian US https://bsky.app/profile/us.theguardian.com
๐ฆ๐บ Guardian Australia https://bsky.app/profile/australia.theguardian.com
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid โข https://Renegade-Research.org ๐ Runs project @remissionbiome.bsky.social โข Donate now โถ๏ธ https://tinyurl.com/44azdsxm
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
M.E. Dx 2015. Since 2016 no longer able to work as a teacher due to this life-changing debilitating illness ๐Need a wheelchair if I do manage to go out. 95% housebound.
Still love music, films, TV & having a laugh. And ๐บ
Infrequent but interested ๐ฆuser
Author of Young, Autistic and ADHD ๐
AuDHD and dyslexic โพ๏ธ
Miloโs mum ๐โโฌ
Views are my own (not my employerโs)๐ก
She/her ๐๐ปโโ๏ธ
Website / contact / order my book โก๏ธ https://linktr.ee/saraheboon
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. Itโll be ok in the end. If itโs not ok then it ainโt the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
11 year old American Bobtail rescue who fought lymphoma bravely. Her family will continue to raise money for rescues and to try to help cats and pups find their forever homes
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someoneโs life depends on it.
๐ฌ๐ง: Severe ME & long covid
๐ณ๐ฑ: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
๐ณ๏ธโ๐
Wisconsinite. Packers Fan. Animal lover. Disabled by a stroke @21 in '85. ADHD, ME, MCAS, autoimmune vasculitis and iatrogenic PTSD. Previously AFROTC cadet and licensed pilot.
mum of 2 kids, 1 cat & 1 dog, wife, ADHD, PMDD, POP, & ME/CFS with fibromyalgia, she/her, human rights are for everyone. LGBTQ+ safe here. ๐จ๐ฆ in ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
ME after covid infection Feb'22. Young dad. Bedbound. ๐ #ThereForME #GreatestMEdicalScandal #PEM ๐ฌ๐ง๐ฒ๐ซ๐ช๐ฆ๐ง๐ช
I am 'Katie's Voice' the widower of a Deputy Carehome Manager lost to Covid-19, and son of Susan, who also fell victim to the pandemic.
https://twitter.com/Charles83230639
https://covidfamiliesforjustice.org/
https://covidaction.uk/
UK 42 year old mum of preteen, had ME since early 20โs and I am a Specialist ME Physiotherapist www.mephysio.org.uk
Bit poorly. Campaigning for ME research and awareness. Music. Sport. Films. Animals. Spurs. Thomas Dolby. Janey.
Explainer video production: https://clausernst.com/en/
Moderate Long Covid since "mild" SARS-CoV-2 infection in Jan. 2021
She/her, Physio student on hold since Oct 2021 LongCovid/ME ๐ฌ๐ง
Learning to live with Cognitive Dysfunction ๐ง #FBLC #pwME
My Twitter handle was @SarahLizzyLou
Working for the community. Living with ME/CFS. Proud mother.
Long covid and mecfs warrior
Apparently I donโt like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know itโs Skeeting & hashtags donโt work the same. Give me time.)
